Hi Tinkerbell. I have NCS too. Unfortunately, the high salt diet and meds didn't work for me. I now have a pacemaker. Please don't let that scare you! It's not nearly as bad as it sounds. In all honesty, I prefer it to the meds (those meds were rough, yuck!) I was terrified when I first found out I had to get the pacemaker, but now that I have it, it's great. I am not completely pacer dependant (my heart can "outrun" my pacemaker, it just doesn't let it slow down below 60)
I too failed a couple of tilt tests. First one, I was up for something like 7 minutes.....then my heart stopped, I stopped breathing, and my blood pressure was non-existent. The 2nd one I was on meds and stayed up a bit longer, but when I went down, the same thing happened. That's when my doc said it was time for a pacemaker.

I don't know what to tell you really. Just wanted to reply to say I know what it's like to go through it. You mentioned that they wanted to repeat the sonogram thing (an echo?) I wonder if they are thinking that they might have missed mitral valve prolapse? I wonder that because my first cardiologist had the same worries. However, my 2nd one (1st one moved) said that my NCS just mimmicks MVP. Maybe that is what it is in your daughter's case too. Or is it even MVP that they are looking for?

Have they repeated the tilt table since your daughter started taking meds? I'm not a doc, but I STRONGLY urge you to think that one over a LOT if it is suggested. Your daughter is obviously still experiencing some major symptoms....to repeat the tilt would more than likely result the same as the first time....it did for me. If I had it to do over again, I would have refused the 2nd tilt...live and learn I too was told I had the "worst reaction" in the 20yrs the hospital had been using the tilt test where I had it done. Wow...NOT something you want to be famous in a hospital for! LOL Bless your and your daughter's hearts!

I did have a couple of problems when I first had my pacemaker implanted. If it is ever recommended for your daughter to receive one, feel free to PM me! Feel free to PM me if you want to anyway
Let us know how the appt goes.-Hyper