General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


advertisement
Reply
 
Thread Tools Display Modes
Old 10-04-2013, 05:54 AM #21
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

That level is fine.

When you get the injection, it is the cyano type, and you might not be able to handle that as well as the methyl oral.

I don't think you need the injection if you take the methyl every day.

If you have the methylation error/mutation and cannot methylate properly (MTHFR), you will be low in folate too. There is a methylfolate called metafolin. Estimates are that 10-30% of people cannot methylate properly because of this DNA mutation.

If you had a test close to the injection time, some of your level may be artificially raised. You would have to wait a week for a more accurate result.

Just make sure you eat potassium rich foods, and you should be okay.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote

advertisement
Old 10-04-2013, 07:32 AM #22
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
That level is fine.

When you get the injection, it is the cyano type, and you might not be able to handle that as well as the methyl oral.

I don't think you need the injection if you take the methyl every day.

If you have the methylation error/mutation and cannot methylate properly (MTHFR), you will be low in folate too. There is a methylfolate called metafolin. Estimates are that 10-30% of people cannot methylate properly because of this DNA mutation.

If you had a test close to the injection time, some of your level may be artificially raised. You would have to wait a week for a more accurate result.

Just make sure you eat potassium rich foods, and you should be okay.

Thank you for your answer!

I took the test after 10 days since the day i got the shot.

Since i've started the injections, i stopped the sublinguals and the injections are hydroxocobalamin.

The potasium levels were fine. Why do you say to eat potassium rich foods?

Thank you again!
raluca_o is offline   Reply With QuoteReply With Quote
Old 10-04-2013, 08:34 AM #23
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

The test for potassium is not accurate. It can result in artificially raised values. This is called factitious results. This means it is possible for a low reading to measure normal, and a normal level may report high.

If the blood sample is not handled perfectly, the red cells burst and release their high potassium content into the serum. Some labs will report "lysed sample" indicating that the cells have dumped the potassium this way, but not all do this. They can even burst if the tourniquet is too tight when the sample is taken.

So you don't really know if your test was perfectly done. Only if you get a low report, can you be fairly sure that the cells are not lysed. So eating potassium rich foods, is basically a good health habit anyway. You need 4500mg a day from food to maintain all the functions in your body. That is quite a bit, and most people don't get that amount anyway.

If you are anemic and get a B12 shot, you will possibly stress your potassium levels, because the B12 stimulates new red cell formation quickly, and the red cells consume alot of potassium. Symptoms of this are weakness and muscle cramping. That is why your doctor tested your potassium.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 10-07-2013, 02:18 AM #24
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
The test for potassium is not accurate. It can result in artificially raised values. This is called factitious results. This means it is possible for a low reading to measure normal, and a normal level may report high.

If the blood sample is not handled perfectly, the red cells burst and release their high potassium content into the serum. Some labs will report "lysed sample" indicating that the cells have dumped the potassium this way, but not all do this. They can even burst if the tourniquet is too tight when the sample is taken.

So you don't really know if your test was perfectly done. Only if you get a low report, can you be fairly sure that the cells are not lysed. So eating potassium rich foods, is basically a good health habit anyway. You need 4500mg a day from food to maintain all the functions in your body. That is quite a bit, and most people don't get that amount anyway.

If you are anemic and get a B12 shot, you will possibly stress your potassium levels, because the B12 stimulates new red cell formation quickly, and the red cells consume alot of potassium. Symptoms of this are weakness and muscle cramping. That is why your doctor tested your potassium.
I got it! so, in this case, with a level of over 900 obtained after 1 month of sublinguals and 2 months of 1/month shots (which means 2 shots), how do you advise me to continue the b12 treatment? My doc said to stop all b12 intake but i would like to continue at least 500 mcg shots...What do you say?

Thank you!
raluca_o is offline   Reply With QuoteReply With Quote
Old 10-07-2013, 06:25 AM #25
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I would think that since you had no symptoms from oral use, and you had good levels, why get injections at all?

They do not use the 500mcg injection dose of B12 here in the U.S.
Only 1000mcg. The injections provide a fast bolus of vitamin over a 3 day period and then you have nothing, until the next shot.

Taking oral you get some every day, however a smaller amount each day, but this is still 3 x the RDA if you use 1000mcg tablets.
This is more gentle and mimics the way we get B12 from food.

It is your decision, but oral seems best to me. You have to stop the oral too, before any testing. You could ask for an MMA test, to see if you are utilizing B12 properly. If MMA is elevated, that indicates not enough B12 is biologically active. Low MMA means the B12 you have is working.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 10-07-2013, 08:44 AM #26
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
I would think that since you had no symptoms from oral use, and you had good levels, why get injections at all?

They do not use the 500mcg injection dose of B12 here in the U.S.
Only 1000mcg. The injections provide a fast bolus of vitamin over a 3 day period and then you have nothing, until the next shot.

Taking oral you get some every day, however a smaller amount each day, but this is still 3 x the RDA if you use 1000mcg tablets.
This is more gentle and mimics the way we get B12 from food.

It is your decision, but oral seems best to me. You have to stop the oral too, before any testing. You could ask for an MMA test, to see if you are utilizing B12 properly. If MMA is elevated, that indicates not enough B12 is biologically active. Low MMA means the B12 you have is working.
OMG, so many things i do not know (( I will have the MMa test done.
I do not take orals since i started the shots, so i guess the B12 level wasn't influenced by any of them. I took the tezt, 10 days after the shot.

Anyway, thank you very much!
raluca_o is offline   Reply With QuoteReply With Quote
Old 11-11-2013, 07:59 AM #27
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
raluca_o raluca_o is offline
Junior Member
 
Join Date: May 2013
Posts: 16
10 yr Member
Default

Quote:
Originally Posted by raluca_o View Post
OMG, so many things i do not know (( I will have the MMa test done.
I do not take orals since i started the shots, so i guess the B12 level wasn't influenced by any of them. I took the tezt, 10 days after the shot.

Anyway, thank you very much!
MrsD,

I took another test, after stopping any b12 intake and the level was 1250.

I stopped taking any sort of pills and shots but i still feel like ****.

I guess B12 was not my problem since i have such high levels and my health doesn't seem to improve. Anyways, the shots were hydroxocobalamin so i don't think i had an absorbtion problem or that the body is not using it properly.

thank you!
raluca_o is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Husband has Rsd ond the whole right side of his body !! poodlemommy88 Reflex Sympathetic Dystrophy (RSD and CRPS) 6 09-11-2012 07:46 AM
Pain inflicting stomach and head, both on the right side of my body? Valerie-Anne Multiple Sclerosis 3 06-10-2012 12:27 PM
Pain worse on left side of body januarybabe Peripheral Neuropathy 3 09-01-2011 06:02 PM
dizziness, left side numbness, but not a stroke Jen Ken General Health Conditions & Rare Disorders 3 04-28-2008 09:08 AM
Tingling in Left Side of Body GiGi Thoracic Outlet Syndrome 3 03-07-2007 03:37 PM


All times are GMT -5. The time now is 12:36 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.