left temporal lobe. very large ac that ruptured. he had craniotomy fenestration in july 2013. we just had a recheck and not much improvement since surgery altho he is feeling better.
the symptoms that got his diagnosis were severe headaches (mornings) with vomiting that got worse over a few weeks (from rupture until diagnosis & emergency surgery). but looking back i can now see the symptoms that he had that i never noticed because i thought i had a healthy unique child. so now im trying to learn all i can and understand what he experiences. he is still symptomatic. we are waiting to see if he will get a shunt at next recheck.
im his mother and i love him so much and it's scary. im glad to read about others who have this and can describe what they feel.
anyone with temporal lobe ac please i would like to communicate so i can understand my son

My son was diagnosed with an arachnoid cyst in his brain. 2 years ago when it was discovered I was told by his neurosurgeon that it is massive and was splitting both his temporal and frontal lobe. Yesterday he told me that there is no brain matter. That this part of the brain never developed. Instead there is a huge sac of CSF.

No brain? Is this true? I can't find a strait answer anywhere and I'm losing my mind.

My name is stanley, i'm 56 and four months ago i was diagnosed with a large or should huge arachnoid cyst 5.6cmx5.7cmx9.8cm on the cerebellum and the neurosurgeon said it not causing all my symptoms.and there's a lot of them.lost and don't know what to do. Life has change for the worst Stanleyr

Hi Stanley,
You are not alone. I am a fellow sufferer who is increasingly incredulous at ALL these Neuros who say that the large lumps pressing on our brains are causing none of the symptoms we present with. Maybe they just don't understand Arachnoid Cysts at all.
Still, if you would like to share your symptoms and your problems with a sympathetic group, perhaps that will be a first step in coming to terms with your condition.
Always here for you.

Dave.

Hi Stanley,

Welcome to the NeuroTalk Support Groups!

Welcome Stanleyr.

My symptom are Headaches 24/7 and sometimes so bad I'm throwing up.
The left side of my face is pins and needles.My arms and hands go numb and sometimes down my right leg.My neck is real stiff and sore. concentration and memory are gone and can't focus. Ringing in my ears.It feels like someone is pushing me on the back of my head.The whole left side of my head is pins and needles.
Thanks Stanley

HI,

I was suffering from severe headache so doctor suggested MRI BRAIN...
My report says::

There is a evidence of well defined extra axial csf intensity lesion seen in right temporal region measuring approx 72*49*27 mm.
It is hyperintense on t2w image and hypointense at t1w image and suppressed on flair image. No definite evidence of diffusion restriction seen.it is causing mild mass effect in form of compression of adjacent brain parenchyma.
Mr study reveals arachanoid cyst involving right temporal region.

M suffering from regular headache and drowsiness and weakness... doctor prescribed anti anxiety and sleeping medicines....

It was diagnosed in OCTOBER 2015. Currently my doc is treating me under anti anxiety plls and sleeping pills In short i m under depression medication.


I can feel a wave in side my head which is causing me pain, m suffering from acute numbness of legs, arms and Head, headaches sleeping disorders. SOME DAYS BACK my eyes became red on its own i was not able to open my eyes(As if there is something leaked, it was red and white totally).
Doctor saying ignore cyst. Is IT??

I have a feeling that it is creating a problem but Doctors are not ready to listen to me. Pls help.

Hello Im new to this and I need some help
I was born with arachnoid cyst in my cerebellum it was found when I was 14yrs old. I havent had any symptoms over the years. But 16months ago I have been suffering from many many symptoms my neuro says its not the cyst since I get many different. They say I have health anxiety symptoms. I did have some of those symptoms 10yes ago and lasted for 8months then they went away. now I have had same plus many more. Ive read all on this forum that dr have told you ur symptoms are not due to cyst but is therr any of you who were born with this cysy? and started having symptoms later in life? and if so what kind? im not 38yrs old. I would love to hear from you please