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Old 07-24-2007, 10:24 PM #1
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Default Scared and confused

Not even sure Im putting this in the right place, but Im having an awful day, and decided I needed some support and help.
I just got a letter from my neuro who I saw on Friday, and in the letter(not in the consult) he says that I probably have fibromyalgia (on top of myasthenia gravis)not sure what to think about this. I also got a phone call from my GP who wants to see me regarding some blood test results,(dont see him til Friday!!) so needless to say Im a bit stressed and would like nothing more than to have a good cry. Thanks I think I really needed to just put this out there, knowing people are probably going through something just as scary, frustrating helps. Hope your days are better.
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Old 07-25-2007, 02:52 AM #2
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Hi redtail,
So sorry you've had such a wretched day. I hope that the doctor has some answers for you on Friday. Only another day to go till then now. It sounds as if you have a lot on your plate right now. Feel free to vent away if you need. I hope tomorrow is a better day. Rest up and all the best for your Friday appointment. Let us know how you get on.

Here's a hug from the east coast.

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Old 07-25-2007, 06:39 AM #3
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Hi redtail

joining in Lara's hugs for you and hoping you will be able to rest up and not worry (easier said than done, I know )

do keep us posted
we are always here for you

Cheri
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Old 07-25-2007, 11:05 PM #4
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((((((((redtail)))))))

Gosh... I hate stress!!!!!!!!!!

Sorry you are having so much of it.

My doctor wrote in her notes that I had Fibro, but she never really told me that (that I remember).

I don't think I have it, but I do have some serious nerve problems.

Here's an uplifting story from England...

(it pretty much reflects my experience, too)

http://www.health-boundaries-bite.co...MPRESSIVE.html

(((((((((redtail)))))))))
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Old 07-26-2007, 10:52 PM #5
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Thumbs up thanx

Thank you all so much for your kind words
I have just got home from my GP appointment, he did the usual doctor thing, your looking well, and then ran thru the good points of my blood test, then got onto the one he called me in for the Ca-125, which tests for ovarian cancer!!!!(among other things), he said it was slightly elevated, and then went on to say what can cause that, endometriosis, and all manner of other things, by this time I was rather upset, but managed to say I had been diagnosed with endo some years ago, "oh that will be it"he said, "as its only raised a little that would account for it, if its cancer its in the thousands" (mine was just under 100) A HUGE sigh of relief, (not that I was worried or anything) and a big thankyou for listening and caring
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Old 07-26-2007, 11:15 PM #6
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Hi, Redtail...

I can definitely sympathize with what you were going through. Right now I'm waiting for the results of a CT scan I was given six weeks ago. They won't give me the results over the phone, and I'm in a position where I have to get caught up on all my medical bills before making another appointment.

I also had a PC call me once several months ago and tell me that she had to talk to me immediately. She wouldn't say what it was about on the phone. So I had to get a friend who lives twelve miles away to come and get me and carry me twenty-five miles to the doc's office. Then I waited in a small room for an hour and a half, and when the doc finally came in all she told me was that she wanted to send me to a new specialist instead of the one we had talked about on my last visit. I was so mad at her for putting me through all of that worry and dread!

I'm really glad that your results turned out to be mostly good, though. And I hope they'll get better still. Good luck, and the very best of wishes!

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