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Old 06-25-2018, 02:47 PM #1
ScottTX ScottTX is offline
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Default Atypical Parksinsons/General Encephalopathy

About a year ago my mom (just turned 70) was walking, talking & enjoying time with friends (in an assisted living facility). Since then she has lost the ability to speak, walk, feed herself or any activity at all. She is in a wheelchair, transferred by a lift from bed to wheelchair & back & living in a private residence with around the clock nurses. Neurologist has said she has Atypical Parkinsons (not sure which one) & general Encephalopathy (again nothing specific) through all of the testing. I am always looking for answers or any suggestions to care for her better & keep her comfortable. She currently is only taking carbidopa levodopa. She has become rigid & this has helped. Her feet have turned inward & it looks/seems very uncomfortable. At this point we have been told to just keep her comfortable & no further plans for any type of treatments or solutions.
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Old 06-25-2018, 08:23 PM #2
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My Mood: Atypical Parksinsons/General Encephalopathy
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I placed a copy of your post on our Parkinson's forum also -
Atypical Parksinsons/General Encephalopathy

Are you able to get access to more medical details - past testing & results reports, drs notes on symptoms & diagnosis?
She may need to give written permission or medical power of atty so Drs can talk to you.
Did she gradually lose abilities over the year? or was it a dramatic acute change?
How long ago did she start Carb/lev? before the loss of function?

Any second or third opinions?
alternative/naturopath/ acupuncture? Just mentioning alternative options.
It seems like she lost function quite quickly, I would want to know why & how if it was my loved one. I'm guessing they ruled out stroke.
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