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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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About a year ago my mom (just turned 70) was walking, talking & enjoying time with friends (in an assisted living facility). Since then she has lost the ability to speak, walk, feed herself or any activity at all. She is in a wheelchair, transferred by a lift from bed to wheelchair & back & living in a private residence with around the clock nurses. Neurologist has said she has Atypical Parkinsons (not sure which one) & general Encephalopathy (again nothing specific) through all of the testing. I am always looking for answers or any suggestions to care for her better & keep her comfortable. She currently is only taking carbidopa levodopa. She has become rigid & this has helped. Her feet have turned inward & it looks/seems very uncomfortable. At this point we have been told to just keep her comfortable & no further plans for any type of treatments or solutions.
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#2 | |||
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Co-Administrator
Community Support Team
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I placed a copy of your post on our Parkinson's forum also -
Atypical Parksinsons/General Encephalopathy Are you able to get access to more medical details - past testing & results reports, drs notes on symptoms & diagnosis? She may need to give written permission or medical power of atty so Drs can talk to you. Did she gradually lose abilities over the year? or was it a dramatic acute change? How long ago did she start Carb/lev? before the loss of function? Any second or third opinions? alternative/naturopath/ acupuncture? Just mentioning alternative options. It seems like she lost function quite quickly, I would want to know why & how if it was my loved one. I'm guessing they ruled out stroke.
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