Parkinson's Disease Tulip

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Old 06-25-2018, 02:47 PM #1
ScottTX ScottTX is offline
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Default Atypical Parksinsons/General Encephalopathy

About a year ago my mom (just turned 70) was walking, talking & enjoying time with friends (in an assisted living facility). Since then she has lost the ability to speak, walk, feed herself or any activity at all. She is in a wheelchair, transferred by a lift from bed to wheelchair & back & living in a private residence with around the clock nurses. Neurologist has said she has Atypical Parkinsons (not sure which one) & general Encephalopathy (again nothing specific) through all of the testing. I am always looking for answers or any suggestions to care for her better & keep her comfortable. She currently is only taking carbidopa levodopa. She has become rigid & this has helped. Her feet have turned inward & it looks/seems very uncomfortable. At this point we have been told to just keep her comfortable & no further plans for any type of treatments or solutions.
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Old 06-27-2018, 11:30 PM #2
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Originally Posted by ScottTX View Post
About a year ago my mom (just turned 70) was walking, talking & enjoying time with friends (in an assisted living facility). Since then she has lost the ability to speak, walk, feed herself or any activity at all. She is in a wheelchair, transferred by a lift from bed to wheelchair & back & living in a private residence with around the clock nurses. Neurologist has said she has Atypical Parkinsons (not sure which one) & general Encephalopathy (again nothing specific) through all of the testing. I am always looking for answers or any suggestions to care for her better & keep her comfortable. She currently is only taking carbidopa levodopa. She has become rigid & this has helped. Her feet have turned inward & it looks/seems very uncomfortable. At this point we have been told to just keep her comfortable & no further plans for any type of treatments or solutions.
Scott, I'm not sure if the term atypical P.D. and Parkinson plus syndrome are the same but I think it could be as in maybe MSA (multiple system atrophy) or one of the other similar syndromes that can benefit initially from levodopa but not to the extent that a typical P.D. person would.
The fact that your Mum initially benefited from levodopa could be that she has P.D. but is underdosed.
That or maybe its something related to P.D. that responds to levodopa but not to the same extent.
Can you arrange for her to be examined by a neurologist who specialises in movement disorders?
Best wishes.
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