Well you sure started me thinking last night with your horsey B12. lol
I was thiniking about how when I lived in England decades ago it was okay for veterinarians to work on humans, but illegal for medical doctors to work on animals. The reasoning was that the science used by a veterinarian was applicable across the board, but that the beliefs incorporated into the practices of a medical doctor were not necessarily beneficially in keeping with science. Something like that.

And then I started thinking about the safety of B12 that's manufactured for horses. Which led me to think about the news stories about pharmaceuticals that were/are made to look like the real thing by counterfeiters, and which have been sold at drug stores that people here in the US would normally trust.

I started thinking about our judicial in the US which feels free to condemn a man or woman to death, but if you show that a lawyer has lied causing great damage, they don't feel it's important enough to do anything to deter further wrong actions on the part of the lawyer.

So who can you trust?

And I thought exactly the same thing about the horses which are very valuable. I mean, clearly some horses are much more valuable than many people, and I do mean a number of poor people as opposed to one single valuable race horse. (This is not how I feel, it is what I have observed. It makes me sad.)

So, I'm wondering where to get horsey B12.


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The gov. thing on B12 is good. I think I've looked at it before. One thing that keeps me from recommending it is the very low amounts of B12 that it recommends. Those amounts are way too low for anyone to use to obtain significant relief from nerve damage.

It does talk about folic acid and B12 and I wanted to do that too, when I was writing to you last night, but I was so tired it was painful. (I have to have my Revised Brief complete and filed on Friday, so I hope after that I can rest normally again.)

Anyway, I was too tired to think clearly about my experience with folic acid and B12.. I remember that when I started taking the hydrochloric acid, I also ordered NSI B12 capsules that I swallowed along with a hydrochloric acid capsule. I took my other B vitamins at the same time, I seem to remember.

What happened was that several symptoms I'd had of low B12 remained as reduced as if I were having B12 shots. So I was all happy. But then ... and the trouble is I forget and I think this was during the time I didn't have power, so I don't have an actual record. Or maybe I do because I wrote some hand notes, only I haven't transcribed them into my computer yet.

In any case, some serious B12 symptom suddenly got a lot worse. But which one, I can't remember, I just remember that I knew that I wasn't getting the whole of the help I got from B12 injections.

I'm afraid this isn't very clear because I don't have notes to identify exactly what I did and exactly what the results were.

Which emphasizes that keeping notes is essential if you want to know later what helped in what ways.

Thanks for an interesting set of posts.

Boy, this too is interesting. While I was aware of much of the information, I had not previously seen a recommendation of a daily dose of 2,000 mcg. I have mostly seen people recommend 1,000 mcg a day, and to me when I take so much more, it seemed a sadly low recommendation.

2,000 mcg is the same as 2mg and after a month of this dose would be equal to about two shots a month. I know for sure that I did better on two shots a month than one. (And then after years of that I was astounded at the difference it made to my peripheral neuropathy when I had a shot a day.)

Again, thank you very much for sharing what you've found.

Hi Escape,
I'm sorry to read that you're having trouble getting the B12 you need. It upsets me that if it were an antidepressant that you thought you needed, the docs would be rushing to write the prescription for you.

Be that as it may, if I were you I'd get one of those little boxes with the days of the week on it, and put my different pills in that. Someone here recommended it to me, years ago, and it's made a world of difference. I couldn't remember what I'd taken, or what I was yet to take before I had the little box. The box doesn't make me remember better, it simply shows me what I have taken and what I have yet to take.

I would for sure get one of those. You will be amazed at how great it is.

And, if you have the money, I'd for sure get the 5mg Methylcobalamin lozenges. I forget, but I think it runs something like $16 for two months.

I haven't always had that much money, so I know it may not be possible for you to get. And I don't have enough money to pay my October mortgage so I can't send you some. I used to send it to people who couldn't afford it who wrote to me.

(((((((((Escape)))))))))))

Hi all. Well I don't think I'd be here today if it weren't for taking my B12. I also take folic acid.

Now question: somewhere I read that we need the folic acid for the B12 to absorb better. I send this stuff to people I know & have for past several years. I've been stressing to take the B12 1/2 hr away from the other vits or even food. Am I wrong about this?

I take B12 Methylcobalamin 1 MG. Now after all these years I FINALLY bothered to read the label,it says can take up to 3 per day! I've always just taken one. I keep mine right by my computer so I don't forget. (out of sunlight).

Somewhere in this long thread a gal named Clare mentioned a spider bite 7 yrs ago. How her hubby believes this was the beginning of her health decline. I just want to say my spider bite was 9 yrs ago & my life has gone downhill ever since. I've researched spider bites for many years. And there's even a chance the spider was from Australia (boxes were unpacked in the basement that had some stuff from Australia in them). This bite is still visable on my foot after all these years!

Right after the spider bite I began having severe myoclonic jerks,my entire body jerked from head to toe. I lost my memory,had many strange neuro symptoms. Had vertigo,balance problems,foot drop. Too many things to list right now. My one & only B12 test came back at 900 so was flagged as TOO HIGH. At the time I was taking a multi B. the doc said to stop taking B's. I was also diagnosed type 2 diabetic @ this time,so of course had cut out grains (B vits).

Thanks to Rose (and others) I found out about B12. I have no proof this has helped,but I can say that everytime I stop taking it I decline. The depression,cognitive skills,energy.....all goes downhill. Extreme fatique is one of the worse issues I deal with on a daily basis. I also have arthritis in my hands,knees,and now my hips.

I'm now wondering if I should increase my dosage to at least 2 per day? I've never been diagnosed with PN. These past few months I have noticed numbness,tingling and pain in various parts of my body. This is a new thing for me.

Also I'd like to point out that for those of you suffering from stomach issues: try a gluten free diet & see if that helps. It did help me. I just need to stick with it better!

My hair has been falling out at a rapid pace also. I credit the folic acid with keeping this to about 1/2 what it is I remove from the drain if I don't take it.

My moons are back on my thumbs and some of my other nails,overall my nails look much better. No more white spots (zinc?).

And too bad I don't have a horse,I figure I'd get better treatment from a vet!

Just my input into the discussion,Buttons

P.S. I kinda feel that the B12 makes me hyper,sorta like I'm wired for action,does anyone else notice this? I'm not on any other vits right now. Also want to point out that Metforim (diabetic drug) depletes B12!!

Hi Buttons, what an Interesting post!
As an aside, I always have white spots appear when I have additional stress.

The spider account is interesting. I was bitten several years ago and was surprised at how long it took for the bite to heal. Years. I think it was some sort of rather normal spider around here. I was living in an apartment complex that had just been built, and there were a lot of spiders racing around outside as if they were relearning the lay of the land and getting ready to compete at Daytona.

Have you tried Milk Thistle to remove toxins, at all? I was surprised at how it appears to have helped get rid of some of the hydrogen sulfide that must have still been in my system and was causing certain nerve damage/reactions.

I would for sure take more of the Methylcobalamin, especially if you are finding some of your symptoms are on the increase.

Thanks for a very interesting post.

Karen,

I was clarifying because of something you wrote.

Karen wrote:
I wanted to make clear that people who have pernicious anemia don't have intrinsic factor to "control."

rose

The government is getting better, but their site still contains important errors. Not a good source of information.

rose

Escape,

Not having a stomach is like having "pernicious anemia." You don't have either the stomach acid or the intrinsic factor.

So the treatment would be the same as for one with pernicious anemia. Standard is 1000 - 2000 mcg oral or shots.

rose

Buttons,

Sorry if you've already answered this, but has the thyroid angle been thoroughly explored?

Your case is certainly complicated. Any one of three or four conditions could cause your problems, and except for the spider bite , they often occur in the same person.

Regardless, what the heck. More methylcobalamin can't hurt. And make sure you are getting the other nutrients. They're all necessary, and some work very closely together.

I wouldn't take anything else with my B12, not food, not supplements, not meds.

A small minority find themselves wired by their B12. Those often decide to take it in the morning.

rose

Regarding the veterinarian angle, when an RN friend and I were doing a huge amount of reading on B12 years ago, it was much easier to find good information regarding livestock than people.

It pays to have livestock healthy.

Fortunately B12 is easy to get, so we don't have to raid the livestock cabinet.

rose