[Ellie]

I have never been blessed with much grace in my life, so for me to complain about this is almost sprinkled with irony.

I have a severe midline shift to my right side, needless to say - I run into a lot of things. I underwent vision therapy as there is no correction for my coordination (or lack thereof) and it helped a little, but I think most of that may have been in my head.

Maybe I am unwilling to accept the aging process, maybe it's my epilepsy, maybe it's related to my crappy eyes that can't be fixed, or perhaps the Lyme, or 'something' else. But I am getting worse.

I can only compare it to being blind and having someone move something in your home that you have become used to being in the same spot. The only difference is I can see, I see it there and then I run dab smack into it. My days are painful, sometimes funny (if I can't laugh at myself, what can I do?) and typically messy since I spill a lot of things.

It's like being extremely clumsy and lacking depth perception.

When I fill my coffee pot, I do it twice because I spill about 1/4 of the water aiming for the hole. When I fill my coffee cup, it overflows 3 out of 5 times. When I walk past my staircase (which is awkwardly located in the middle of my house), I run into it 4 out of 5 times. I run into doorways more than anything, always on my right side.

Now I keep tripping over my foot which is new. It's like it doesn't come up enough and from the top center of it down to my toes it drags and then I trip. Almost like my foot is dragging and my leg isn't catching on to pick it up. I caught myself yesterday walking to my mailbox like a horse where I was pulling my knees up to avoid tripping.

Is there something that would cause my foot to suddenly become a lazy addition to my leg? I'm sure I'll eventually learn to deal with it, but it's annoying. I usually laugh and anyone in my house usually laughs with me (or at me) but it's not really funny all of the time.

I will usually trip over the top half of my foot (it kind of bends) or my foot stays sort of flat and it drags and I end up tripping that way.

I feel like I'm nuts, heh.

I'm not paying for vision therapy again since most insurance companies think it's some fad thing. Plus, being taught how to walk is kind of weird since I know how to walk and all.

I was thinking maybe it has to do with the Lyme as my joints swell up a lot now and even the muscle covered areas of my arms and legs swell too. I thought maybe the swelling makes my foot mad or something.

Anywho, it could probably be anything or just me being a clumsy nitwit. I just wanted to vent about it. Just had carpet cleaned last week and then tripped today and spilled coffee on it.

Gah!

[Jomar]

I suppose you were checked for Parkinson's when they did all of that testing recently?
- the foot drag thing reminds me of how my dad started with it.
But it could be many other things too

Proprioception?? I think that is when you aren't aware of where you are in relation to objects???
You can see objects but your awareness of space/distance is off - I think that it a basic description of it.

[Jomar]

found some info about it-
http://www.sensory-processing-disord...sfunction.html


a whole list of sites-
http://www.google.com/search?q=Propr...ient=firefox-a

[Ellie]

Well, the sad part of being in this area is that my doctors are idiots. It's funny I pay them and then educate them. The doctor I was sent to, told me to take these antibiotics and THEN go get a full panel done (which most people are aware that the antibiotics can really jack up your results). This doctor, per her website, claims to specialize in the diagnosis and treatment of Lyme Disease - and then looked at my file, looked at the pictures and left the room. I could hear her asking someone else about Lyme!

The only thing she was able to do without leaving the room and asking someone was to identify the EM rash (which I had pictures of), and as you know, it shouldn't take a genius to identify a bullseye rash when it looks like a bullseye.

I didn't have my full set of labs done and noted several tests she didn't order. I haven't been tested for PD and several other things. A while ago they tossed around the idea of MS but I was like 25 at the time and it was the same doctor who wanted to treat my seizure migraines with botox (yay california).

I had sensory integration testing as young teen and they pretty much chalked up my FMS's weren't all that great and I had hand tremors (i forgot the name, but it actually has one) - however, my dad has those hand tremors, too and he was tested for PD and he's OK (short of that cancer issue he's ok, I mean).

I'm trying to make myself savvy but I am very cautious doing that because I don't want to end up forcing myself into this paranoid state and starting to self-diagnose. I seem to not accept this whole Lyme thing.

I know I sound crazy, but I just think there's something else doing on. I know I've had weird positive results, but plenty of crap can cause false positives and negatives.

I'm babbling again, aren't I? I swear, I am having one of those days where I just want to talk and talk and talk and I'm sitting here and my dogs wont even hang out with me (perhaps it's the bad haircut I gave Fozzy).

Oh, but yeah. My doctor mentioned that P-word you used. I think theres another term for it. What's weird, is the more testing she did to try and force me to focus (I also can't focus most of the time) she'd notice weird stuff going on (she said it was absence seizures but I think it was just something very mild). The way she explained it, is my brain has good days and bad days. One day it will work enough to let my eyes focus, one day it takes a sick day and my eyes wont focus. I did an extensive test run with her (3-4 days in a row and she only charged for 1, wooo!!) and my eyes performed differently every day.

I'm a lemon

In other news, I have a zit so big on my chin the right side of my chin is actually swollen.

Now that's hardcore right there.

[Ellie]

Oh, also. I will get the IGenex testing done which will cover everything including the co-infections. I know it's important as well as checking for other crap but IGenex is pre-pay and my insurance will only give me a portion of it back so it's not fitting in my budget this month. Hopefully next month I can get all of my testing done. I don't think anything can progress too much in a few weeks.

Oh, also thanks for those links. Checking them out now!!

[Ellie]

I totally just tripped (well, about 20 minutes ago) and tried to break my fall and now my collar bone is crooked. I actually laid there and laughed hysterically. I'd go to the doctor if I could get my arm to reach to put my socks and shoes on.

It doesn't hurt much except when I try to raise my arm up. I think I'll ice-er-up and see how goes tomorrow. I didn't hit my chest and didn't fall hard enough to break anything, I think it's just mad right now.

If it wouldn't hurt, I'd kick my foot for being such a jerk.

I'm going to have my name changed to Grace. Just for the irony. My doctor says I need more iron.

[ConsiderThis]

Originally Posted by Ellie

I have never been blessed with much grace in my life, so for me to complain about this is almost sprinkled with irony.

I have a severe midline shift to my right side, needless to say - I run into a lot of things. I underwent vision therapy as there is no correction for my coordination (or lack thereof) and it helped a little, but I think most of that may have been in my head.

Maybe I am unwilling to accept the aging process, maybe it's my epilepsy, maybe it's related to my crappy eyes that can't be fixed, or perhaps the Lyme, or 'something' else. But I am getting worse.

I can only compare it to being blind and having someone move something in your home that you have become used to being in the same spot. The only difference is I can see, I see it there and then I run dab smack into it. My days are painful, sometimes funny (if I can't laugh at myself, what can I do?) and typically messy since I spill a lot of things.

It's like being extremely clumsy and lacking depth perception.

When I fill my coffee pot, I do it twice because I spill about 1/4 of the water aiming for the hole. When I fill my coffee cup, it overflows 3 out of 5 times. When I walk past my staircase (which is awkwardly located in the middle of my house), I run into it 4 out of 5 times. I run into doorways more than anything, always on my right side.

Now I keep tripping over my foot which is new. It's like it doesn't come up enough and from the top center of it down to my toes it drags and then I trip. Almost like my foot is dragging and my leg isn't catching on to pick it up. I caught myself yesterday walking to my mailbox like a horse where I was pulling my knees up to avoid tripping.

Is there something that would cause my foot to suddenly become a lazy addition to my leg? I'm sure I'll eventually learn to deal with it, but it's annoying. I usually laugh and anyone in my house usually laughs with me (or at me) but it's not really funny all of the time.

I will usually trip over the top half of my foot (it kind of bends) or my foot stays sort of flat and it drags and I end up tripping that way.

I feel like I'm nuts, heh.

I'm not paying for vision therapy again since most insurance companies think it's some fad thing. Plus, being taught how to walk is kind of weird since I know how to walk and all.

I was thinking maybe it has to do with the Lyme as my joints swell up a lot now and even the muscle covered areas of my arms and legs swell too. I thought maybe the swelling makes my foot mad or something.

Anywho, it could probably be anything or just me being a clumsy nitwit. I just wanted to vent about it. Just had carpet cleaned last week and then tripped today and spilled coffee on it.

Gah!

Hi Ellie,
I identify with a lot of what you write. When I was living in the hydrogen sulfide I could not walk through a doorway without bumping into it. I never knew about the "midline" thing, but it did seem as if I tended to bump more on one side than the other.

When I moved away from the toxins (one toxin was hydrogen sulfide, another was the toxic attitude of the condo association) I was in pretty bad shape and couldn't walk along my hallway here without bumping into the walls.

Recently I've begun to notice that I have a bit more balance in the dark and semi dark.

I also don't bump into my hallway walls anymore.

Right now (this very minute, I mean), there's a bit of dimming in my vision, which will go away if I just get up and give myself a B12 shot.

And, that's the thing. I've had SO much B12 replacement since I began using the prescription that my holistic M.D. gave me for a shot a day for a year. To get an idea of how much B12 replacement that is, regular M.D.s often don't even give a shot a month to people whose B12 level is 200. So my B12 level is at least ten times higher than that (I'm talking about blood tests) and I'm having thirty times more B12.

I better go do the shot.

I should add, though, that my feet were giving me a lot of problems ... so it's possible that if I hadn't had the amount of B12 replacement that I did, I would be experiencing what you are. I think there's a high possiblity of that.