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Old 04-13-2010, 11:03 PM #11
newgfcali newgfcali is offline
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Originally Posted by darlindeb25 View Post
Just a thought for you to ponder...gluten sensitivity is hereditary too. Very well could be, your dad is gluten intolerant, and that's why he has the neuropathy to begin with. Find out if you are gluten intolerant, also find out your B12 level, and Vit D. They both are very necessary for optimal health. I was deficient in both, resulting in my neuropathy, which was all caused by my gluten intolerance. Had I known about gluten to begin with, I may never have developed the neuropathy.
Yup... I am gluten intolerant but no sign of enteropathy. Did the enterolab tests. My vitamin b12 is perfect but D was low, so am taking supplements for that. Even though I inherited a DQ1 from each of my parents, neither shows any signs of being gluten intolerant. So that still leaves me with lots of questions. I'm hoping the neuropathy is gluten related, but want to cover all bases in case there's something else "afoot" that I need to address.
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Old 04-14-2010, 06:56 AM #12
glenntaj glenntaj is offline
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Default And just for the record--
--autoimmune attack on gangliosides can result in both sensory and motor symptoms; this often depends on what antibody is involved and exactly what is being attacked.

Take a look at:

http://neuromuscular.wustl.edu/patho...ngliosides.htm
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Old 04-14-2010, 07:56 AM #13
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Yup... I am gluten intolerant but no sign of enteropathy. Did the enterolab tests. My vitamin b12 is perfect but D was low, so am taking supplements for that. Even though I inherited a DQ1 from each of my parents, neither shows any signs of being gluten intolerant. So that still leaves me with lots of questions. I'm hoping the neuropathy is gluten related, but want to cover all bases in case there's something else "afoot" that I need to address.
DQ1 isnt always going to show enteropahy.....may only be "extra gut"
symptoms.....and perhaps your parents only have one each, and you "lucked out" and got one from each....
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Old 04-14-2010, 12:03 PM #14
newgfcali newgfcali is offline
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--autoimmune attack on gangliosides can result in both sensory and motor symptoms; this often depends on what antibody is involved and exactly what is being attacked.
Oh, my... I wish I'd paid more attention in chemistry class.

Thanks for this link. I've just spent the last 2 hours reading through various pages and realize there's a ton of stuff I need to learn before my appointment with the neuro.
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Old 04-14-2010, 12:05 PM #15
newgfcali newgfcali is offline
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DQ1 isnt always going to show enteropahy.....may only be "extra gut"
symptoms.....and perhaps your parents only have one each, and you "lucked out" and got one from each....
Yeah. Lucky.

And how did you know about my "extra gut"?
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Old 04-14-2010, 08:34 PM #16
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Yup... I am gluten intolerant but no sign of enteropathy. Did the enterolab tests. My vitamin b12 is perfect but D was low, so am taking supplements for that. Even though I inherited a DQ1 from each of my parents, neither shows any signs of being gluten intolerant. So that still leaves me with lots of questions. I'm hoping the neuropathy is gluten related, but want to cover all bases in case there's something else "afoot" that I need to address.
My mom doesn't have any issues with gluten, although she often eats gluten free with my dad...she still eats gluten though. My dad is a diagnosed celiac, by endoscopy, never having had his genes checked. I got one DQ1 gene from each parent.
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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