jen, get the epeilepsy checked out. that is a sign that the monitor is triggering seizures. there are ways to adjust the flicker of the screen. also turning off certain graphics help.

i will give a link to your post to our mod ellie. she has e is and has become very knowledgable.

yes thanks Claire,
my hubby and I were talking about this today, and we are going to get one,
Between the balance problems , I have and other things, If I could eliminate this It would make life a little easier.
thanks again>Jen from oz ( suspected Celiac, dyslexia,MDds sufferer,)

thanks Claire, its just a compaq 7500 it dose flicker (refresh thing)
jen oz

JENNIFER SYMPTOMS MATRIX

I HOPE YOU ALL DON’T MIND BUT I HAVE THIS FOR MY DR
I FIGURE HE’S BETTER OFF KNOWING MY FULL SYMPTOMS TO MAKE A DIANOSIS, SO HERE IT IS.

12 YEARS AGO ENT SAID I BELIEVE ITS MAL DE DEBARQUEMENT
MRI SHOWED NOTHING
1st time on a fight to china, felt a strange sensation,
When we arrived, in china, balance completely gone, rocking sensation very strong, an illusion of visual rocking rolling, almost knocked me over, MDds for around 1 1/2 years during a very stressful time; my immune system was down,
Had a big week celebrating stayed up drinking ect, Was run down,
Forgot to get more B12,
Just recently, the week before I got it back Swam to bottom of pool,

Tested negative for B12 deficiency. But was already taking Sublingual supplements by then, 4 months, I now take folic acid,
Get monthly B12 shots
And magnesium calcium and D sups as well as a multi every day,

My Symptoms
Recently
Eye stabbing ,Ear stabbing pain. like pin pricks
Electric shock in head right side Much more frequent.
traveling up to top of my head, hurts, can happen 6 times a day, only last a few seconds or so is intermittent
always very very tired , with muscle soreness, and stiffness, weekness legs arms
Generally returns in during summer
The rocking swaying and visual movements, Normally last’s 1 to 1 ½ years
When remission comes ill wake up in morning, completely fixed
cant remember words or names of things,
stuttering slurring words.
Permanent floating feeling like on a boat (rocking bobbing)
Sensation never stops, only (calms) if very still.
Even at night in bed, sometimes relieved by laying on left side
Mornings are less towards the afternoon its a lot stronger

My legs went to jelly the other day and it was difficult to walk, gait was terrible
Night blindness in right eye
My hands arms and feet flinch when I’m tired
Sometimes feel a little fluey; sometimes feel hot but not sweaty, like a low temp
Feeling of movement in head, like bubbling on top inside.
When rocking is at a 8 to 10 Eye lids are closed, I can feel it flickering, moving constantly, can’t relax them (left eye)
Stress hormonal changes all makes it worse
Eye’s cant scan properly while using computer reading,
Using a mobile phone vibrates the opposite ear; I can hear the opposite ear closing on people’s voices and sucks sound in and out vibrating
Intermittent, sound likes White noise, or power station.
Sometimes whistling high pitched, in left ear but not all day, I thought every one had this,
In the dark my balance is very bad,
Only the feeling of my feet touching the floor tells me what way is up.
Sore stiff neck, tenderness in lower back, all possibly just due to holding myself stiffly.
My perception of Depth and dimension is very limited during this time.
Have difficulty moving through doors, small areas, or in dim light. Or Shopping, crouds
Riding in moving vehicle, feeling dissipates.
Mornings I’m less dizzy, progressively worse by afternoon and night,
When it gets bad and I see focus on an object it appears to move or rotate slowly,
Computers, reading, concentrating, all make it worse
Visual discomfort, I sometimes slur my words become Clumsy can get the dropsy’s,
Neck cracking and popping
Completely forget what something is called, like dementure patients
Constantly forgetting words, or names for things (stress) ?
Lately my left eye twitches a lot. (Maybe stress)
Heavy stiff aching legs
Waves lapping at my ankles always’
Patches of Skin very sore to touch for no reason in one area normally top of leg or heat.
Pin prick pain in legs.toes

Occasional symptoms once in a blue moon.
When it first comes, Pulsating, sucking in left ear at night to heart rhythm, not buzzing.
Feeling of something in my ears blocked or tickling
Once I woke lying on my right side my eyes were twitching back and forth fast for about 4 seconds, that’s never happened before, or since, only once.
If I totally relax my neck watching TV head turned to the right, my head will gently bob around
Age 14 through to 30 Occasionally ( 3 times a year) I’d get searing head pain lasting seconds, shooting up to top of head and face then leaving me with face ear pain and numbness afterward
Haven’t had these in about 2 years.
Hot area generally on legs heated spot, different places. Sometimes too sensitive to touch, hurts.
On stretching my legs, my head tingles fuzzy right side
Hard ear wax , occasionally need removing by dr
Heart palps on short tri to another room
Hearing fluctuations,
At other times supersensitive to any noise even my own voice
If i ingest wheat or gluten now my mouth swells and i itch all over no! Rash
Woken up Vibrating all over, very fast, generally while sleeping, or waking.(rare)
Right Hip goes out a lot, cant walk till it pops back in.

Computer screens make rocking worse, and head tingling electric shock type
Before gluten diet,
Possible celiac,
Before gluten free diet.
Bruising easily
Fluid retention bad.
Concentration probs (couldn’t read)
Needle prick sensations all over legs feet in eye
Chronic constipation
Mood swings (anger) confusion,
Brain fog

Known illness is
One month old chronic eczema as a child, resembled impetigo, blister like
On legs and buttocks, went away at age 7, Then I got asthma attacks, instead
Recent blood test show I’ve had glandular fever at some stage recently?
High cholesterol,
smoker,
Dyslexia.
Concentration prob’s relieved a bit by gluten free diet,
Late menstruation 16 1/2
at 15 , was always very skinny , 45 kilos ( BIG EATER COULDN’T GAIN WIEGHT!) , until MDds
I had chronic migraine for 4 days (once only) only ever get chronic migrain about once or twice a year now.
AT 17 I HAD CRONNIC PAIN TRYING TO GO TOILET, AND WOULD FAINT A LOT, FOR ABOUT 2 YEARS
HEART PALP’S FORM ELECTRIC PATHS IN HEART. FORGET WHAT IT’S CALLED. NOT DANGEROUS ITS COMMEN.


REMISSIONS HAVE OCCURRED DURING

Going off antidepressants
Going on antidepressants (ZOLOFT)
After gluten free diet and going on b12
AFTER THE FLUE

FATHER HAS EPILEPTIC ATTACKS OCCASIONALY
COLITIS, BOWEL TROUBLE, PERIPHERAL NEUROPATHY.
COUSIN MUMS SIDE, HAS ANERFALACTIC SHOCK ALLERGY TO OATS.
AUNTY DADS SIDE DIED OF BOWEL CANCER
OTHER AUNTY HAS LUPUS DADS SIDE HER daughter has schizophrenia
My brother has schizophrenia

Jen,

I am again struck by how many of the same symptoms I had when I was B12 deficient. This is one I don't think I've ever written about, but I definitely had it~ just one of the wierder things.

Using a mobile phone vibrates the opposite ear;

Well, for me it was talking on any phone.... but if I listened with my right ear, I'd get all the crackling, buzzing, morse code going off in my left ear. And vice versa.

My daughter had seizures that I believe were related to B6 deficiency related to her gluten sensitivity and pyroluria. During one of her early EEG's, they were able to trigger a seizure with flashing / strobe light. One time a camera flash set off a seizure. We did limit computer use and video games during this time, and watched for seizure activity. When I was a child into early adulthood I fainted a lot. My daughter's neurologist suspects I was probably having seizures and not fainting.

I would not be surprised if you were having seizures. I think it would be a good idea to have an EEG to see if they could provoke a seizure or find any abnormalties...but even if you are having seizures you may be able to gain control through dietary changes (gluten free and possibly other foods, too, like casein and soy) and taking nutritional supplements. Food sensitivities and nutritional imbalances (deficiencies or excess) of many vitamins/ minerals can cause seizures.

How long have you been off gluten? Sometimes people become even more reactive to gluten in the first six months or so after it is first removed, and even trace amounts that might have slipped past unnoticed in the first month... will suddenly not 'slip past' any more. While the photosensitivity can certainly trigger seizures, even trace amounts of gluten contamination could also be contributing.

Your family history sure reads 'gluten sensitivity' all over the place. Here are a few more pages from the gluten file that might be of interest to you if you haven't already seen them.

Seizures/Epilepsy
Schizophrenia
Pyroluria


Cara

Hi claire,and everyone, well after researching my brains out for 1 1/2 years i might be onto something here, 12 years of a debiltating disease with NO! help from the DRS i think ive found my issue's and hope im not be jumping to conclusions but here goes nothing, a couple of days after moving house My rocking came back as i siad in full force.after researching on the net for less than 5 minutes my head tingling electric shocks came back, in the past couple of days ive started seeing the wall through some sort of haze, swirling and rippling as if looking through heat rising, i spoke to my dr about this and told him i spoke to a friend of mine, (nurse) who said hey jen that sounds like MAV, and yes, you do get virtigo with it or balance probs , my new dr agreed whole heartedly with that and he said he thinks i'm on to my problem, and agrees that i may have been having migrainous siezures with out the headache . and what ive been seeing is aura's . how wiered is that, i always believed the colours and lights were just normal and every one had this. dough!!! so i'm off to get a eeg and still wiating for my MRI 4th of june, hopefully that will rule out MS. he said it could be a result of my celiac, as siezures (Epilepsy) is comen with celiac. he he lol. you can just all call me Dr jen, sooooo funny, i know . but i must admit this new Dr has listened and never acted like i was crackers as so many others have. soon i may stop rocking.ya! hugs to all. jen

thanks Cara, i so know what your saying, and i bleieve i'm on the right track no matter what the dr say, ive read alot about celiacs in the past 16 months and have tried hard to stop all gluten, but sometime i make mistakes. ive never had any symptoms common symptoms of celiacs but now after being gluten free for 16 months or so , and some slips into my diet, my mouth swells and i get itchy all over but NO RASH is this something that happens as i'm confused and wonder if its some other new allergie???? thanks again for the info, jen from oz

This almost sounds like wheat allergy... which is an IgE immune response. Have you ever been tested for wheat allergy?

It is possible to have both celiac disease (IgA, IgG immune system response) and wheat allergy (IgE immune system response). IgE allergy, when severe, can cause a serious anaphylactic reaction.

Cara

no cra only cluten for celiacs whats the test for wheat.?

Wheat allergy would be diagnosed by an allergist through standard IgE allergy testing... sometimes done by scratch test, sometimes by blood test.

Wheat is one of the top eight food allergens~
http://www.foodallergy.org/allergens/index.html

This one also gives a bit of an overview about food allergy
http://www.epipen.com/causes_food.aspx

I have met a few people who have both wheat allergy and celiac disease. For the most part, it doesn't matter because in both cases you must avoid wheat. (also barley and rye for celiac disease) It matters only if you had a severe reaction to wheat... and this could potentially worsen over time.

If your mouth swells after eating wheat you should see an allergist and be tested for wheat (and potentially other) allergens. The itching/swelling sounds more like an IgE allergic response.

Swelling of the throat or difficulty breathing is reason to seek emergency care immediately. Any swelling on the face (eyes, lips) should probably be seen in urgent care when it's happening, unless you have other directions from your doctor.

I hope you will discuss this with your doctor...before it happens again.

My husband recently had an allergic reaction that involved swollen lips and swollen eyes, and intense itching, later hives. We took him to urgent care after Benedryl given at home wasn't working. The urgent care doctor sent him home (with stronger antihistimines/steroids) and told him to return to the ER if he had trouble breathing. By the next morning he was having trouble breathing. The ER nurse said ANY swelling on the face due to allergic reaction should be seen immediately. In fact, she told us next time to call 911!! She said reactions can happen/change quickly...and it isn't worth risking. They had just lost a young man to an allergic reaction the week before, on the ambulance ride in, so I think she was feeling particularly cautious.

I don't mean to alarm you or be overreactive... I just think it is important for you to see an allergist about this. They might decide you should carry an epi pen.

Cara