We have been riding the roller coaster ride since he got home. He had the shunt setting changed to 2.0 but each day has been insconsistant. He is acting like he is on sedatives but is not. he is still very tired and lacking of general energy and not interacting or connecting to us much. He is unusually snuggly though. He still has his head banging episodes and is not making progress. THe docs still don't have the answers. They think he could have caught a bug in the hospital but we have been home 17days now. oh and one even suggested he was having behvoir issues due to puberty! Which just conicided with his surgery! Are you kidding me? Yeh its hard to have faith in the neurosurgerons with talk like that. I really need to see him get better! WE are doing our internet research and still searching for answers because his quality of life is not good right now.

Susan

Susan,

I'm sorry your son is still suffering. I think you need another opinion.

Dr. Harold L. Rekate is one of the top doctors specializing in hydrocephalus (among other things).

Call his secretary (the number's at the bottom of the page):
http://www.bnaneuro.net/barrow_phys_rekate.html
and find out what you need to send to him. I'm assuming MRIs, CT scans, and records probably. But, the secretary will tell you. Make sure that you stress that this is an EMERGENCY.

This guy is one of the best in the country. He'll tell you what you need to do.

I'm hoping (more than that, praying) that we get Nick balanced back to his old self again.

BIG HUGS.

Barb

Susan,

I just found Dr. Harold Rekate's email address: Harold.Rekate@bnaneuro.net.

If you haven't contacted him yet, email is the fastest way.

More hugs.

Barb