[DJ928]

Hi I have Meralgia Paresthetica
I have been frustrated for years now I have been to countless doctors and specialists and it seemed every time I found or thought I was getting close to finding out what it was and how to treat it almost every time I had to start at the beginning again. I was so sick and tired of everyone telling me that it was the slightly herniated disk in my lower spine. I found a specialist that said it was not my disk and still I was searching. My PCP had put me on Lyrica and it has been helpful but after all this time of using drugs I am now experiencing side effects similar to E.D. My PCP finally sent me to a Neurologist and he diagnosed me with Meralgia Paresthetica and again I thought I am getting close to a solution. He even mentioned a surgical treatment that may fix it. Months went by and I hadn't heard a word keep in mind I am not on disability and working at minimum 40 hours a week. So I called him back and asked about the surgery and guess what he told me... Well there is no surgeon that will want to just go in and attempt to fix it even with a diagnosis lets have a look at a MRI of your lower back. I wanted to shoot him! So I go down and get yet another MRI and send it to him months go by, finally a call from him and he says it is not your lower back. So I ask again about the surgery he says that there is no surgeon that will want to do the surgery because the nerve is so small and difficult to locate. So I am now back at square one. I have been chasing a cure for at least 8 years now and yet to no avail. I am planning on asking my doctor about disability and seeing where it goes from there. I will also be investigating the corticosteroid injection into the groin it is said to help. Of course lucky me I have it on both sides so that means two injections in the groin I only weigh 140 lbs and my pants are so loose they almost fall off so I am wondering what caused this condition. Any way I hope at least some of this information helps someone out there.

Originally Posted by paperbag

I fear I have meralgia paresthetica. I am wondering if anyone still reads this forum?
The pain started just last month, when I tried to do yoga. It is the worst pain I have ever felt. I am terrified of this becoming permanent. I am already on disability for other reasons. I am so scared right now.

I have already been through hell with misdiagnoses from doctors, and it's only been 1 month since I first developed this pain.

If anyone is still around, please post a reply. I'd love to speak with someone who also has meralgia paresthetica.