My essential tremor is being controlled pretty good with Inderal, but I still have times where my hands shake, I use Sign Language with my deaf friends which causes me problems with my shaky hands.
I was wondering if anyone has had success's with some homeopathic treatments for ET.

Hi fireflysinmyjar
I moved your post off that older thread as it is more likely to get replies here

hope you find answers to help

all the best
Cheri

I have ET as well as tremors from MS. I was put on Neurontin for nerve pain but as an added benefit it helped my ET. I still get the tremors occasionally but they are not as bad as they were.

I have not tried any homeopathic remedies but my neuro did suggest drinking 1 glass of red wine a night to help them. Never tried as Neurontin and alcohol don't mix well with me.

Maybe someone else will have more experience with homeopathics and the tremors.

Hi - I've had ET since I was 17 (ages ago!) and blamed it on nerves. That continued until '98 when my husband was leafing through Mondern Maturity magazine, walked over to me and pointed out a cartoon figure of a man who's hand was shaking uncontrollably and gave a number to call along with the gist of the solution. I immediately contacted my physician and asked him to call Mayo Clinic in nearby Rochester. I underwent surgery June 10th of that month for a monolateral deep brain stimulator. It worked so well I'm now considering the bilateral.

I couldn't eat, write or hold a newspaper before and appearing in public was agony. After the surgery (and it's not nearly as bad as it sounds!) I've gained new confidence in myself and am enjoying a life to its fullest.

Look into it. You'll be glad you did!!

I am so happy for you! I have had ET for 6 years now. Have seen 4 neurologists, and all have diagnosed it as ET, however, the only med that helped was an antiparkinson one.It was somewhat controlled, but is now much worse. They say it is genetic, my grandmother, and two cousins. The current neurologist believes that antiseizure meds help and now my whole left side is shaking, I am at my wits end.
I was always an upfront social person, it has changed my life.

Hi the firefly, im lynn from the uk,im 33yrs old. Ive suffered from shakey hands since i was 14yrs. But i was always too imbarassed to say anything until now. I went to see a doctor in London who did some tests. He wants to put me on beata blockers. Will find out on friday what ones i will be prescribed by my local doctor and what dose. As different tablets help some ppl and not others. Guess its going to be abit of trial and error i guess. Could you tell me how you get on with the medication that you are on? Hope im dont being too rude?

Hi I am 36 yrs old and have suffered from myoclonus since age 31. First I had, and still have, palatal myoclonus and now I have (for the last year) spinal myoclonus. Part of the spinal myoclonus is the cronic, involuntary spasms of my arms, shoulders, neck, stomach, back... So though your spasms/tremors are in your hands mine are in my arms and shoulders, but I FINALLY have created some help for myself. You asked about homeopatic treatments and I HIGHLY rec. biofeedback and Physical Therapy doing cranial say-pree-al (this is NOT the correct spelling- sounds like that- spelling ??), Omega 3 (Arti Omega with the lemon flavor), Slow Mag, vitamin B 1, B6, B12 sublingual. I have tried EVERYTHING and every type of medication you can name. Just a heads up- as I read this med mentioned in another posting- Neurontin made me gain LOTS of weight (I took it for 5 years and gained 30 pounds- it eliminates your metabolism). Best of luck. I still suffer, daily, from constant ear popping (palatal myoclonus) and from constant arm spasms etc, but I am doing all I can to help myself. Stay strong! Know that with this website, you aren't alone. Until I found this site today I felt TOTALLY alone with these myoclonus conditions. Only 1 in 2 million people have palatal myoclonus and only 1 in 3 million have spinal myoclonus. I hope and pray that my sharing this and lending whatever help I can that someone out there will read this and also know of someone who has my very rare myoclonus conditions. Best of luck to you with your conditions. Take care Topsie

Hi Lynn,
Thought I would reply to you as I am here, not to step on the toes of Firefly.
No doubt you have started Inderal by now, hope it's going ok. Inderal (propranolol) or Mysoline (primidone) are the two medications proven to be the most effective for Essential tremor but as you say,not all meds suit everyone.
If one doesn't work for you they will try another. Topiramate and gabapentin are others that some find beneficial. Easiest is to start with the smallest dose and increase slowly as per side-effects etc. Your doctor will give you instructions and monitor your progress.
There is a neurologist at a clinic just outside London, from memory he has ET and I believe is actively involved in a group. Let me know if you want any info.
For now
Nick

I am trying to get more information for my father. He is 70 yrs old and just in the last year his ET has progressed that his head/mouth shakes and his speech is effected also. The doctors have him on Topamax and endurol and primidone. It does not seem to be getting any better although my mother says it seems to help a little since he started on Topamax. It has been very discouraging for my father as it seems to have aged him significantly in the last 3-4 months. He is extremely embarassed over his voice not and head/mouth shaking. We are thinking of getting an MRI to start the process of elimination of potential other issues but it seems to be classic symptoms or progressive ET. He has seem 2 neurologists and both have diagnosed him since his father also had it. We are seriously wanting to pursue an ET specialist vs. a regular neurologist. Any advice?

I have heard perhaps b6/b12 shots. I also heard that maybe botox shots might help the quivering in his voice.

Help!!!!!!!!

Hi Deb,
I note it's been sometime since your post however if you are still waiting for help I'll give you some support and pointers.
Yes you are correct a movement disorder specialist (MDS) is a neurologist with fellowship training in specialist areas. With your concerns it would be prudent to visit a MDS. Many people are diagnosed by neurologists, quite often correctly but some incorrectly. Many do give their diagnosis based on it being an inherited condition, assumptions can be risky.
Vitamin b6,b12 if he is deficient but in clinical trials there was notable improvement with additional b vitamins.
Botox is most effective with head and vocal tremors but it's dose dependent and has to be repeated approximately every 3 months.
Most importantly - the diagnosis first, then take it from there.
Not trying to drag you from this site but you can get regular support,advice from the ET forum at WEMOVE. Link below,register and start new topic.
http://www.wemove.org/cgi-bin/ultima...19/1000/0.html
best wishes
Nick