Hi duckybaby:

Sadly for some of us limbo is a place we stay in for a long time.

A negative MRI, as you said, doesn't mean you don't have MS, it's just means there are no visible lesions.

Like you I have clinical signs - nystagmus, double/blurred vision, spasticity/clonus, pain, neurogenic bladder and bowel, neuropathic pain. The MS clinic I go to (five hours away) usually discharges patients after three negative MRI's.

They have kept me on, giving me symptomatic treatment and a quality of life I would never have had otherwise.

Oh - my evoked potentials were normal. My neuropsych report could not rule out MS-like cognitive issues. I have never had an LP.

I hope you can get to an MS clinic and find a sympathetic neuro. It's hard trying to get by on your own. The forums have been a great source of education and support. I hate not knowing why my life took a 350. Maybe you are one of the 5% that don't show lesions.

Good luck in your quest for a dx. Keep us posted.