its horrible to be sick, and really, truly KNOW you are sick, and not be able to point to an Xray, or MRI, or peice of paper on blood work to say "I told you so!" some MDs treat you like you are whining, or just looking for a way to get out of work. Family starts looking at you like you just dont want to help them. its soooo frustrating!


You KNOW when something is wrong, but in this current medical field we are unable to prove, and or disprove many many things. There are more than 100 diseases that mimic MS. Sjoghrens, Lupus, Lyme, and so on. The test for Lyme is extremely sensitive, and should be sent to a special lab for a special test. Most regular labs that test for Lyme get greater than 50% false positives! They miss it frequently. Same for spinal taps, unless your MS is in an ACTIVE phase, the Obands wont show up that proves MS. Its truly hunting for a needle in a haystack full of needles.

Whether its MS, or viral, or Lyme, or a vit def, I hope you are able to maintain the energy, support, and drive that it takes to chase down a diagnosis. You are welcome to come here, and whine, and question, and pick whats left of our brains. We have so many that live, and lived on Limbo island. You are in good company.

Hang in there!