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10-18-2009, 04:23 AM | #1 | |||
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Elder
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Wow.. I've never heard or read anything that said MS doesnt directly cause numbness in the extremities. My neuro told me that my current whole-left-side-of-my-body-from-the-neck-down numbness was caused by a spinal lesion...probably at C4. (we know I had one there in 2006...)
Where did you read this? as for suggestions on what to do for them...got none. I just did a 2wk taper of oral pred, hoping that my left side would wake up, or at least the hand would, and it did nothing, nada, bupkiss for the numbness...at least I dont feel like my hand is being crushed anymore. The pain was pretty bad, and I know it was nowhere near as bad as it could have been. I could barely move my fingers at the worst of it...at least now I can crochet some, knit some and type fairly well. (actually have more problems typing than I do when I do yarn-y stuff...)
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"Thanks for this!" says: | Friend2U (10-18-2009) |
10-18-2009, 04:37 AM | #2 | |||
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Member
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I don't have ms, but my cns lupus shares a lot of similarities with it.
I also have peripheral neuropathy, which in my case has caused numbness in my extremities. My feet and lower legs are very numb, and according to my nerve studies it won't be long before my hands are effected as well. I also have motor symptoms (loss of function), but with PN it is not necessary to have motor symptoms as well. There is a very active peripheral neuropathy forum on this site with people in it who know a LOT more about it than I do, you may like to post over there for more information. hth raglet |
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"Thanks for this!" says: | Friend2U (10-18-2009) |
10-18-2009, 09:44 AM | #3 | |||
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Senior Member
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Quote:
thanks
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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10-18-2009, 09:46 AM | #4 | |||
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Senior Member
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is that when I bend my neck I'm getting shooting pains of some sort down my whole body. Not sure what that is about. I guess I'm just in a whiney mood today. Soirry.
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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10-18-2009, 04:00 PM | #5 | ||
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Member
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Hi Friend,
The pain when you bend your neck might be L'Hermittes caused by a spinal lesion. Lots of us have had it before, it seems. I had it awhile back for maybe a week or so then it went away. Don't feel bad for venting to us here. We're all in the same boat. This time of year with the seasons changing always seems to be particularly hard for me. Hang in there. |
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"Thanks for this!" says: | Friend2U (10-18-2009), Twinkletoes (10-19-2009) |
10-18-2009, 04:11 PM | #6 | |||
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Senior Member
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F2U - we both have the very same sx's. Both my feet and both my fingers are numb. My feet can feel incredibly cold but the skin is warm.
Numbness has advanced over the past few years, left foot is more numb and right foot is less cooperative, does not move as well. left hand is more numb than the right. I am PPMS so there is nothing other than living with the sx's and just hoping it goes slowly rather than quickly. |
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"Thanks for this!" says: | Friend2U (10-18-2009) |
10-18-2009, 06:36 PM | #7 | |||
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Member
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Both my pinkys are numbish and creaping from pinky towards thumbs.
Cant sense remote control buttons like I did. Forearm by elbo. Tops of hands tingly. Right thumb muscle gone, left has started to follow since Jan 09 Bend neck to look hard down and forearms tingle (this was 1 neuros test) Paraplegia since 89, MS diagnosed 06 Last edited by EddieF; 10-18-2009 at 07:21 PM. |
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"Thanks for this!" says: | Friend2U (10-18-2009) |
10-18-2009, 07:27 PM | #8 | |||
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Senior Member
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For the last many months I have been fearing that I am progressing into SPMS. I haven't had a giant relapse for more that a couple of years, but everything seems to be steadily worsening. I have had this thing in my neck before like even over twenty years ago and just thought it was my discs in my neck. But at this point, after what you said, I'm pretty sure it is the ms. I've never mentioned this to the neuro, but I think I will next visit. Do you find all of your sx worsening gradually? You PPMS, how long have you been dx?
Thanks for you input AND THANKS TO ALL FOR YOU COMMENTS IT HELPS TO TALK... Quote:
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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10-18-2009, 11:20 PM | #9 | |||
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Grand Magnate
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Long time, no see ... friend!
L'hermittes is what you are experiencing with the zapping down from your neck. That is from damage to the C-spine, and the damage could be from any number of things, including a MS lesion. The numbness in your hands is from the same thing. As the picture (of the full body) on this site indicates, it has to be going on in the upper C-spine to affect the hands: http://www.aqavic.org.au/sci_facts/whats_sci.html That pic shows all the sections of the body that can be affected, BELOW the area of spinal cord injury/trauma/lesions. Cherie
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"Thanks for this!" says: | Twinkletoes (10-19-2009) |
10-19-2009, 02:23 PM | #10 | |||
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Senior Member
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I think a call to the neuro office is a good thing. With my doctor office, it goes to his nurse practitioner/co-worker/I have no idea what her title is and do not really care because she is the person that listens and relays the information.
I just know her name is Lynne! But call because you feel your situation is progressing and that, in itself, is your reason to call. Doctor's decision from that point on. He may want to get an MRI if you have not had one in a while. I was dx'ed in 2005 but I had sx's for quite a while, I was told long ago that I had arthritis in my neck so I attributed some sx's to the faulty dx. Not that it really mattered, MS is MS. IMNHO. I am now walking with a rollator. Since walking is slow and laborious, I got a prescription for an electric vehicle. I chose a wheelchair that breaks into pieces so that we can pack it in the car trunk for outside excursions. But I am still walking around, just not hiking any trails. Call your doctor and let him/her know you think you are progressing. That's my thought. |
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