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Old 12-20-2009, 10:48 PM #1
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Aarcyn Aarcyn is offline
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Aarcyn Aarcyn is offline
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Oh Amy. First and foremost, you have my sympathy that your doctor mixed up your report from another patient.

Second, do you feel any different? Was it a surprise that you have more lesions. Are your sx's worse or was the news worse than the reality?

Third, Copaxone is not a cure. If it was, EVERYONE would be on Copaxone as a first choice. It is only one of the ABCR's. Like the rest of the DMD's, it has a 30% effectiveness in reducing the possibilities of further exacerbations.

That means you are in a 70% majority.

But it is more about how you FEEL rather than how you feel about the news that you have more lesions.

Do you take an AD? If not, start the process of finding a good one for you. MS and depression go hand in hand.

I am sorry for your results.
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DizzyLizzy (12-20-2009), Twinkletoes (12-21-2009)
Old 12-20-2009, 11:17 PM #2
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Heart

Unfortunately, my symptoms have gotten worse. My speech is getting more slurred and my balance has not been very good either and my short term memory is getting shorter by the day. I wiped out in a parking lot about amonth ago and still have the deep scabs on my knee, and then I fell out of the van last weekend but thankfully was able to grab the car next to us to break my fall. I have been trying to ignore the sx's....but it's getting harder to do.

I have been on ad's for about 15 years, and am monitored at least quarterly to keep me on track. I was just not expecting to have news like that I guess. My Dr. really regreted having to tell me this information....I'm sure it is not a conversation he would want to have with anyone. I do not blame him though, he's human and that is exactly what I wanted in a Dr..... one with a "heartbeat" and one that has compassion, of which he has both.
__________________


Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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