Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 12-20-2009, 09:36 PM #1
DizzyLizzy's Avatar
DizzyLizzy DizzyLizzy is offline
Member
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
DizzyLizzy DizzyLizzy is offline
Member
DizzyLizzy's Avatar
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
Default Seven months on Copaxone.... and it's not working

I just started my 7th month on Copaxone and went in for a MRI last Wednesday. The MRI was scheduled at 7:30 am, and my appointment with my Neurologist was at 9:00 am. After completing the usual sensory and coordination tests we talked about the MRI films. My Dr. took a look at the films from that morning and compared them to the set from last spring. He said that he really didn't see any changes and felt good that the Copaxone was doing its job. This was a huge relief especially since I just went through a pretty bad episode in October and I was concerned that my brain would have lit up like a Christmas tree! I left the appointment feeling so good that the daily injections were actually working.

The next day my DH and I met for lunch and were talking about how great it was to get a good report the day before and we both were feeling quite relieved. When I got back to work after lunch, my phone was blinking with a message. When I listened to it.....my heart absolutely sank when I realized it was from my Dr. He asked me to call him back at my earliest convenience and when I do call, he wanted me to ask the nurse to put me on hold and ask that they come and find him to let him know I was on the phone. My heart started racing and the tears started to well up in my eyes......

When the Dr. came to the phone he started to apologize to me right away....I couldn't comprehend what was happening at first, but realized that he was apologizing for making a very unfortunate mistake the day before. Aparently he pulled up another patient's file, one whose name happened to be "Amy" too . That Amys last two sets of MRIs did not show any obvious changes but when he recieved the Radiologists report Thursday morning he realized that he had not been looking at my films at all the day before. When he read the report and compared my films......the results were not good. My MRI shows a significant increase in the number of active lesions and it is very clear to him that the Copaxone is not working, so he wants to see my DH and I at 8am Monday morning to discuss where to go from here.

I am absolutely crushed. I can not stop crying, I have not been able to focus and I feel completely off balance. My concern is that I am not a good candidate for Interferons because of my chronic depression and now Copaxone is out, so all that is left is Tysabri, Cytoxin and Imuran .....at least I that is what I understand. I hope I can get some rest tonight.
__________________


Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
DizzyLizzy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (12-21-2009), Dejibo (12-22-2009), NurseNancy (12-22-2009), Twinkletoes (12-21-2009)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Copaxone coletaterbug Multiple Sclerosis 7 07-07-2009 12:38 AM
Copaxone...would this be an IPIR? Erin524 Multiple Sclerosis 17 03-05-2009 08:31 PM
Copaxone dmplaura Multiple Sclerosis 15 02-07-2009 06:55 PM
Looks like I will be trying copaxone again barb02 Multiple Sclerosis 19 01-11-2009 08:46 PM
Copaxone question greenapple Multiple Sclerosis 8 05-07-2007 04:30 PM


All times are GMT -5. The time now is 12:38 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.