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#27 | |||
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Elder
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NO! its not, and it is frustrating to me! I feel like everyone else wakes up, gets out of bed and says "oh, my X hurts, and I am XYZ, I am in a flare!" its not that cut and dry for me. I have vague silly things that lead up to suspcisions. like when watching TV for a longer period of time, I would get a split in my vision, but when I looked away for a min, or did something else it went away. The MS center says a flare is a sx that last 24 hours with NO breaks in the sx....so, I had a break in the sx...its not a flare? or is it?
I have this sense of high anxiety, and panic attacks, but they are not my normal attacks! its weird, its normal for me to have anxiety, but this is a change in what is normal for me. It doesnt last 24 hours, so the books say...no flare. my feet are burning lately. like standing on hot pavement. That shift your feet back and forth kinda burn, but if I sit down, they stop. Went to the big city hospital and gave them my list of sx. They say "its a big flare!" well....how the heckpie and I supposed to know this? They do reccomend keeping a journal. they do reccomend calling them to discuss it if I feel out of the ordinary. I dont know, I find this whole disease to be confusing and inconvienent. Can I swap it out please? nothing is "by the book" and what your sx are, may be completely different than mine! You can take interferons and get depressed, and I take them with no sx, oh unless you count the extremely high liver enzymes! not a single sx that led me to believe I was in danger. Nothing fits! nothing is like the books say its supposed to be! What happens to Suzy doesnt happen to me, and half of what happens to Cindy is bizaare in my world. I am confused, with enough cog fog to shut down the airport, and know they want me to keep track? Im dizzy when I even start to think of this stupid disease. Best answer. Keep a journal. If its out of the ordinary for you, call your MS center or the nurse from the drug maker that you use. The Shared solution or beta nurses are amazing! full of good answers. Past that, Im lost too. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | Debbie D (01-12-2010) |
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