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#1 | ||
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In Remembrance
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Hey guys, I have a new symptom of late. Probably 4months or so on and off. (have RRMS by the way) Since it came and went I was not very worried as that is the nature of this disease with me. Comes and goes. Since this has been ongoing now for so long, albeit does come and go, I am wondering what it may be.
When I stretch my muslces "vibrate" for maybe 15 seconds afterward. I mean not subtle either. I also have had increased spasticity and cramping. My electrolytes are all right on the money, so no issues with deficiency at this time. Ok, I'll be quiet and learn now. Thanks for any insights!! HUgs, Deb |
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#2 | |||
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Magnate
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Do you take Baclofen?
It may be worth talking to your doc about it. You don't have to suffer from the pain from spasticity and cramping. Zanaflex also works although my doc has me take that at bedtime since it can make you very tired. Marijuana also works for spasticity, and you may find that a couple of puffs is a good starter if you don't want to head right to the pills. Talk to your neuro and see what he has to say, and good luck!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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#3 | ||
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Member
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Sounds like MS spacticity and maybe some sort of tremor? I take baclofen for muscle spasms. It helps, mj also helps - even with the "Hug." I'd talk to your neuro, like Riverwild suggests.
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Relax--It only hurts until you die . I'm still walking upright and six feet above ground. . |
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#4 | |||
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Grand Magnate
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I would guess that it is MS. I have spasticity on the left side of my body -- rib cage to toes. It is worse in cold weather. I also have been dealing with a sense of vibration over most of my body since summer. for some reason, it seems to be worse when I am tired. Neurontin or lyrica may help with the vibrations if you cannot tolerate them. As just mentioned, there are other meds that may help with spasticity. I take baclofen (10 me) four times per day. I t seems to help with my spasms, but does not really do much for the stiffness.
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#5 | |||
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Grand Magnate
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Not alone. Get that too. If it's new and on going - definitely talk to your doc about it. Like the others said, there's stuff out there that can help.
Feel better soon. ![]() ![]()
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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#6 | |||
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Elder
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Wish I lived in your neck of the woods, RW...this state is like a dinosaur in sludge about MM...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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"Thanks for this!" says: | barb02 (01-08-2010) |
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#7 | |||
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Grand Magnate
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hi deb,
i agree. share this with your dr. i've had severe muscle pain for yrs. i finally saw a rehab and pain dr. he put me on amrix. i guess it's a long acting flexeral. my pain is now manageable. i'm so much better. sometimes you have to try different things til you find something that works for you.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | SallyC (01-10-2010) |
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#8 | ||
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New Member
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Quote:
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"Thanks for this!" says: | SallyC (01-10-2010) |
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