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Old 01-21-2010, 08:28 PM #1
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I don't know if this is any comfort but most people with impaired vision due to MS don't go completely blind. Some may become legally blind but that status leaves many with quite a bit of usable vision.

I had several ON episodes but none recently. I did have a visual evoked potentials test a few years ago that was "severely abnormal." I have problems watching anything fast-moving--a hockey game on TV, a fast action movie, or an incident involving squirrels in the yard.

My best corrected vision has varied between 20/30 and 20/60 for the past 20 years. Uncorrected it's at 20/400 in both eyes but I've always been very myopic.

I wear prescription sunglasses outdoors most of the time.

I use Talking Books for books and magazines but that's just as much on account of difficulty with holding reading material as it is difficulty actually reading print.

I have had nystagmus problems, and my left eye tends to veer off center, causing blurry vision in that eye.

I still get around OK as far as seeing goes. I don't always recognize people, can't read fine print without a lot of magnification, trip over things because I don't see them, drop things because I don't see where I'm putting them, and have trouble differentiating colors. In some bright lights all color vision goes.

I find that very disturbing but try to stay out of bright lights.

There were times in the first years with MS when I would suddenly lose all of the vision in the bottom half of my visual field (and would fall). I haven't had that fun-filled experience in many years.
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Dejibo (01-22-2010)
Old 01-22-2010, 09:14 AM #2
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I am currently legally blind. it is a scary thing to lose another chunk of vision with each flare. Its like not only do I have to really slow down, and chose each word carefully while reading it, I have to read what I just read another 3 times before I understand it. Between cog dysfunction, and visual issues, I feel retarded! I miss out on so much.

I used to be snappy quick. I dont want to sound conceited, but I felt like i was 3 steps ahead of everyone else. I just got it. A grades in school were normal for me. Yes, i did a bit of study, but for the most part, I just got it. I could organize, and understand just a bit quicker. Now, I sit and wonder. I feel blunted, and stifled. I cant read well enough to bring the info in, and when I can get the info inward, my cog fog wont allow me to process it at the old speeds.

frustration is my current word.
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