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Old 01-22-2010, 10:57 AM #1
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I don't think I've ever had ON because my eyes have never hurt, but I do have Scotoma, which is a condition that leave black spots in your eyes, it is in both eyes and to the right, I can't drive anymore, I fall over things, I just can't see them. When I was diagnosed is when this happened and it is permanent, It has been almost 15 years and I don't think I have ever excepted it, it stops me from doing so much activity. So, I know how you feel about your eyesight.
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Dejibo (01-22-2010)
Old 01-22-2010, 12:36 PM #2
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poochie, have you asked your eye doc about ON? Sometimes it's just noted on your record but you're not told about it.

Scotomas are often an indicator of ON. I've had them and know how scary they are.

I don't want to alarm you, but if you have or have had ON, you may need to know and have it on your record.
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Old 01-22-2010, 03:15 PM #3
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I used to be really quick with funny snappy comebacks. I cant really do that as well before...and when I'm around some people, I feel stupid. I can keep up with their conversations, but sometimes I feel like I'm forgetting what I want to say.

I hate when people interrupt me, because it throws off my train of thought. My mom is constantly interrupting me when I'm talking. My dad does it to...geeze, does that ever tick me off. Because then I cant get what I want to say to come out of my mouth because they've distracted me.
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Old 01-23-2010, 03:19 AM #4
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I had optic neuritis once in 1988. Complete loss of vision in right eye.

Timing is everything. The Optic Neuritis Treatment Trials had just started up. 3 day 240 mg/6 hr steroid IV thing - I was case number 1 at the Kresge Eye Institute in Detroit.

Vision came back ~ 90% within 6 months. Conclusion in my case - IV steroids didn't help nor hurt.

It's been 22 years - situation unchaged. Eyesight in right eye still slightly blurry.

Tom
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Dejibo (01-23-2010)
Old 01-23-2010, 09:24 AM #5
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My MS MD said I have to adjust to the fact that I have a crappy disease, and it doesnt play fair. Not everyone with MS drags a leg, or needs a wheelchair. Some of you guys need cognitive help, and some need visual help. He said he always takes it hardest when he sees someone lose vision peice by peice. it reminds him of just how unfair this disease can be.

I said that great, now fix it!
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Old 01-23-2010, 02:24 PM #6
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Hi Dejibo, This disease just sucks. Really and truly. I'm so sorry to hear about your cognitive and visual problems. These two symptoms I had when I was first diagnosed and they scared me to death. Just a thought-- my neuro told me that Tysabri was very helpful for these two symptoms. I found that to be the case. I couldn't tolerate interferons and even the copaxone made me feel sick as a dog. So the Ty. was the other option. I'm getting close to the 2 year mark and will probably go off but it seems to be the most safe for a year. I'm not a huge promoter (I believe everyone should make their own choices of what's best for them). Just wanted to tell to tell you my experience. Hope you feel better.
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