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Old 01-23-2010, 10:13 AM #1
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REPOST from blog about this. Long but hopefully helpful.
And then I thought I should share this for anyone who is about to go on IVSM. These are things my doctor didn't tell me I needed.

1. Gatorade! Lots and lots of gatorade!You will need all of the electrolytes you can get.

2. Hershey's chocolate bars!Big ones! Why? Because the IVSM causes your blood sugar to go haywire and they best solution is a little bit of chocolate to help regulate it.

3. Cranberry juice. The last time I was on IVSM I ended up on water pills because I was retaining fluid so bad. i gained 7 lbs in 3 days! You need to be able to pee to flush some of this out.

4. Mints. IVSM leaves a horrible taste in your mouth. The mints help you to make it thru the infusion without being nauseated.

5. True Lime water flavoring packets. These are very strong and normally don't taste very good. If you are not hydrated it increases your chances of blowing a vein. My last 5 day round resulted in 6 blown veins. I couldn't drink water because of the taste from the IVSM. The true lime is very strong and helped to override that taste so that I could drink water.

6. Excedrin. Migraines normally hit me when my blood sugar starts spiking and falling. Excedrin helps.

7. Make sure all of your prescriptions are refilled. You are not going to want to leave your house to go get medications if you run out.

8. Movies. I rented a bunch of movies this morning because I know I am going to be home alone and not feeling like moving.

9. Fruit, Veggie, and Cheese trays. I buy the little ones. It helps to be able to eat a little bit every few hours. These are very filling, they help settle your stomach and regulate your blood sugar. they are also a lot more nutritious than popcorn or candy while you are zoned out watching movies.

Another helpful tip someone posted in response to that was high potassium foods which help regulate blood sugar and also help with water retention.

Good Luck!! I hope the steroids work for you!
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Old 01-24-2010, 10:53 PM #2
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For me, the biggest issue with the 3 day Solumedrol infusion was the lack of sleep - Your Doc set you up with a Sleep Aid ahead of time which is great! I found out the hard way that I would need that Ambien CR just to function. Chewing gum during the infusion helped with the strange taste and I made sure I had all the groceries I needed beforehand like someone else metioned already. Good Luck!

I just "celebrated" my 6 months on Copaxone and it's going great. You just have to play around with the right injections sites and settings for you but once you get that taken care of it just becomes habit.
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