| FAQ/Help |
| Calendar |
| Search |
| Today's Posts |
01-23-2010, 09:37 AM
|
#11 | |||
|
||||
|
Grand Magnate
|
If neuro and insurance approves it, I may give this one a try too.
|
|||
|
 Reply With Quote
|
|
01-23-2010, 10:14 AM
|
#12 | |||
|
||||
|
Magnate
|
My neuro likes this drug too. I told him one poison at a time for me.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
|
|
Reply With Quote
|
|
01-23-2010, 11:52 AM
|
#13 | |||
|
||||
|
Grand Magnate
|
I tried this bird poison (as I affectionately called it) had no real side effects except some very minor throat irritation) but with my PPMS and so advanced in a chair for a year it was not effective for me (You can't read the bitterness in that, can you?)
__________________
Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
|||
|
|
Reply With Quote
|
|
01-23-2010, 11:58 AM
|
#14 | |||
|
||||
|
Grand Magnate
|
Quote:
If prescribed, insurance should pay. Because I took it when not FDA approved, paid myself. Wasn't terribly expensive.
__________________
Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
|||
|
|
Reply With Quote
|
|
01-23-2010, 02:01 PM
|
#15 | ||
|
|||
|
Member
|
Have been in the extended study and am hoping to continue it depending on the cost as I have to pay 25% co-pay
 It has helped me walk!Believe I read it won't be available till March. Linda |
||
|
|
Reply With Quote
|
|
02-02-2010, 11:45 AM
|
#16 | ||
|
|||
|
New Member
|
I have been taking the compounded version. 4AP- 20 mgs (5 mgs every 4 hours) for a couple of months. I can bend the toes on my right foot which was not happening before. I have more energy. There is alot of info on the web about it. Interesting. Good stuff so far for me. I am going to have to stay with the compounded version for now. The new sustained release is expensive!!
Gina |
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | AfterMyNap (02-02-2010), barb02 (02-02-2010), Dejibo (02-02-2010), Grammie 2 3 (02-03-2010), SallyC (02-02-2010), Vonn07 (02-05-2010) |
|
02-02-2010, 09:47 PM
|
#17 | |||
|
||||
|
Magnate
|
FYI,
It also has a beneficial effect on heat related symptoms for some people.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: |
|
02-03-2010, 05:37 PM
|
#18 | ||
|
|||
|
Member
|
Quote:
Linda |
||
|
|
Reply With Quote
|
|
02-03-2010, 06:08 PM
|
#19 | |||
|
||||
|
Magnate
|
More FYI
www.pharmalive.com/News/Index.cfm?articleid=682554 Feb 3, 2010 ... AMPYRA Wholesale Acquisition Price Set at $1056 per 30-Day Supply ... Launched for Uninsured and Underinsured To Provide AMPYRA at No Cost ...
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | barb02 (02-03-2010) |
|
02-03-2010, 07:32 PM
|
#20 | |||
|
||||
|
Grand Magnate
|
Wow -- I hope my insurance will cover it. I have an appointment with my neuro next week. We'll see. Although, they covered copaxone and tysabri 100% so I would think it would cover this too.
|
|||
|
|
Reply With Quote
|
| Reply |
| Thread Tools | |
| Display Modes | |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| New MS Drug Fampridine-SR Oct-15-09 | Multiple Sclerosis | |||
| Improved 25-Foot Walks on Antibiotics (third walk added) - Better than Fampridine | Multiple Sclerosis | |||
| Fampridine Video from WSJ | Multiple Sclerosis | |||
| Approved...!!! | Social Security Disability | |||
| Positive Results of Phase 3 Study of Fampridine-SR on walking | Multiple Sclerosis | |||
probably false hope for longing to stroll the high country and smell the fresh mountain air. But hey, you got to go for it! 
Linear Mode
