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01-23-2010, 09:37 AM
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#11 | |||
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Grand Magnate
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If neuro and insurance approves it, I may give this one a try too.
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01-23-2010, 10:14 AM
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#12 | |||
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Magnate
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My neuro likes this drug too. I told him one poison at a time for me.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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01-23-2010, 11:52 AM
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#13 | |||
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Grand Magnate
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I tried this bird poison (as I affectionately called it) had no real side effects except some very minor throat irritation) but with my PPMS and so advanced in a chair for a year it was not effective for me (You can't read the bitterness in that, can you?)
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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01-23-2010, 11:58 AM
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#14 | |||
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Grand Magnate
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Quote:
If prescribed, insurance should pay. Because I took it when not FDA approved, paid myself. Wasn't terribly expensive.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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01-23-2010, 02:01 PM
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#15 | ||
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Member
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Have been in the extended study and am hoping to continue it depending on the cost as I have to pay 25% co-pay
 It has helped me walk!Believe I read it won't be available till March. Linda |
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02-02-2010, 11:45 AM
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#16 | ||
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New Member
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I have been taking the compounded version. 4AP- 20 mgs (5 mgs every 4 hours) for a couple of months. I can bend the toes on my right foot which was not happening before. I have more energy. There is alot of info on the web about it. Interesting. Good stuff so far for me. I am going to have to stay with the compounded version for now. The new sustained release is expensive!!
Gina |
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| "Thanks for this!" says: | AfterMyNap (02-02-2010), barb02 (02-02-2010), Dejibo (02-02-2010), Grammie 2 3 (02-03-2010), SallyC (02-02-2010), Vonn07 (02-05-2010) |
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02-02-2010, 09:47 PM
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#17 | |||
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Magnate
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FYI,
It also has a beneficial effect on heat related symptoms for some people.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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02-03-2010, 05:37 PM
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#18 | ||
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Member
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Quote:
Linda |
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02-03-2010, 06:08 PM
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#19 | |||
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Magnate
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More FYI
www.pharmalive.com/News/Index.cfm?articleid=682554 Feb 3, 2010 ... AMPYRA Wholesale Acquisition Price Set at $1056 per 30-Day Supply ... Launched for Uninsured and Underinsured To Provide AMPYRA at No Cost ...
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | barb02 (02-03-2010) |
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02-03-2010, 07:32 PM
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#20 | |||
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Grand Magnate
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Wow -- I hope my insurance will cover it. I have an appointment with my neuro next week. We'll see. Although, they covered copaxone and tysabri 100% so I would think it would cover this too.
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probably false hope for longing to stroll the high country and smell the fresh mountain air. But hey, you got to go for it! 
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