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Old 02-09-2010, 06:28 PM #23
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SandyC SandyC is offline
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Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
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Quote:
Originally Posted by Debbie D View Post
Sandy,
five years? That long? What if your symptoms are worsening quickly? Do doctors keep notes and just watch you then too?
Oh yeah they will and it tells them how the disease is progressing or not progressing. Jim was considered RR and then Chronic Progressive during those years because he went up and down and his disability was not improving with relapses. We were told at the five year mark that Jim's condition would worsen over time based soley on his history. They said the relapses would not occur as often and the damage would be harder to come back from. They suspected SPMS at the five year. They were right.

Until...7 years ago I heard one doctor (Jim's neuro) say SPMS and then another (resident) say PPMS. That ticked me off because it seemed no one had a real clue what Jim's ms was. I stood in front of his neuro and asked which one is Jim and he said SPMS. I was pretty sure it was SPMS since most docs said that but when I heard PPMS I got frustrated. Just shows one that even docs have a hard time distinguishing this darn disease.

Oh and we fired that neuro.
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