Ampyra's Been Released for prescribing
 

http://www.nationalmssociety.org/new....aspx?nid=2586

On the NMSS page today...now who wants to pony up and pay for it?;)

I paid $31.00 for a 30 day supply of SR 4-AP from a compounding pharmacy. Now it would only cost me a co-pay of $20.00 with health insurance paying the rest. Expensive for them, but cheaper for me!!! A shame it didn't help me.

I have been in the Fampridine SR phase III/extended study; now Ampyra. It has helped me with foot drop/walking therefore, hope I will be able to find a way to afford the med as I have a 25% copay :( I now walk with one cane instead of two! My only complaint is it wears off before the 12 hr interval-I would like to take it at about 9 hrs.
Linda

Linda if you can't afford it, try 4-AP SR (if still can get and I bet you can. use a "good" compounder who doesn't have old stock (it loses efficiency). PM me if you need.

Ampyra has a registry similar to Tysabri. I saw the paperwork yesterday when I stopped into my neuro's office. Not sure why. but his take was that it is because of the seizure risk. If anyone does go on it, let us know what that's all about, will you please?

RW, what I learned was that one person in the trial took more than rx and much closer in time - she had a seizure :(
Linda

One adverse reaction made them require a registry? :confused:

If it heals its worth it. I'll try it regardless. Testosterone is $100 for 4 month supply (male) which sure as heck along with protein helped MY strength.

I know ... it's what I heard :confused:

grinning here...now You KNOW I am gonna have to go digging. :p
I haven't paid much attention to Ampyra since I don't need it (yet?)
and I figured- hey, it's 4AP-already a lot known about it, but this has got my curiousity up.

I'll post what I find out.