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#1 | |||
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Wisest Elder Ever
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Can you remember the last time you were sx free?
I'm not talking about exacerbations......but just the sx that seem to be a constant reminder that MS is always there. I always have the off-balance feeling. My right hand/arm is always numb. I cannot run anymore. These things are constant. I've had a bout of optic neuritis but it cleared up by itself in about 4 weeks. I didn't do IVSM. Once my left eye cleared up my right eye had to get in on the action. ![]() I'm just wondering what sx you have all the time. and what sx come and go.
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#2 | |||
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Wise Elder
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Oh, let's see.
Last feeling of being symptom free would have been some time in the mid '80s. Constant, unrelenting symptoms would be total loss of balance & coordination chronic, severe fatigue left leg/foot is numb and basically dead weight (profound foot drop) left hand is numb and uncontrollable over all weakness confusion with, and difficulty pronouncing, ordinary words incontinence in both leagues wicked, painful spasticity that courses through the whole body burning, twisting spinal pain random visual weirdness sporadic memory medicated now, but radical unwarranted mood swings the occasional prickle pain extreme sensitivity to outlying temperatures at both ends very discomforting sense of cold in ankles/feet memory loss phantom itching I can't think of any more right now.
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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#3 | |||
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Wisest Elder Ever
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Cindy, I forgot the phantom itching. I get that, too, sometimes. It can be maddening.
![]() I wasn't sure what to attribute the overall weakness to. Lack of exercise, muscle atrophy? Laziness? I do have weakness, though. It slaps me in the face whenever I try to push beyond my usual activity level.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#4 | |||
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Senior Member
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I was sx free when I was pregnant and it was wonderful. As my pregnant progressed my sx's started to disappear. After having my little bundle of joy my sx's slowly came back.
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#5 | ||
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Member
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I had sx-free days last year. A couple of months, actually, after I finished a 6 month course of steroids. The sx came back though, and some never really subsided during the steroids, like the pain in my palms.
Let's see, constant sx? That's changed. Last year I'd say it was weakness in my legs nearly daily. This year though, it's all about pain. Nerve pain in my hands, wrists, fingers TN-type pain on the right side of my head Muscle spasms starting with my neck and throat muscles, and stopping at my knees. Though the spasms have not affected my arms - yet. The hug Memory issues Tremors When my H asks how I feel in the morning, I tell him I'll let him know just as soon as I am awake enough for my body to start rejecting me. MS - Everyday is a new adventure!
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Relax--It only hurts until you die . I'm still walking upright and six feet above ground. . |
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#6 | |||
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Grand Magnate
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NO! I had my first recognizable flare late in March 2007, and have had continuous symptoms. A few come and go (vertigo, itching,) but the majority have not really improved. I sometimes wonder if I am not in RR stage, but it doesn't really make much of a difference since I cannot tolerate any of the CRAB's or tysabri.
Last edited by barb02; 03-30-2010 at 02:51 PM. Reason: typo |
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#7 | |||
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In Remembrance
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I was pretty much sx free in the 80s, but since 1992, I have constant sx. Some days worse than others, depending on the weather or my state of general health, at the time.
I have a general numbness, tingly feeling all the time, now, but LDN has greatly minimized that. ![]() When I have a cold or am stressed or the weather is humid and/or rainy, it's almost like having a flare, but it goes away when the situation changes for the better. Inflamation/infection of any kind is our enemy. Sometimes, if I take a couple of Asprin, I improve....get it - anti inflamitory? ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#8 | |||
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Grand Magnate
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Well, since one of my big sx's is loss of memory, guess I'd have to say "no"..Though that's just a guess
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#9 | |||
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In Remembrance
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I'm sorry Po, that stinks!!!
![]() Call the Prez..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Lady (04-03-2010), PolarExpress (03-30-2010) |
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#10 | |||
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Wise Elder
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There's a symptom free period? No seriously, Jim's never been symptom free unless you count the year or so before dx when he blamed the symptoms on something else like a hangover, working out too much, etc.. He was in the Army so it was easy to pass it off as something else. His first real symptom was drop foot and blurred vision that blinded him for half a day but thank God it came back. Every since then it's been a constant run of symptoms. He was dx'd in 1988.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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