I am of the opinion that all medications can have side effects, which they must post, even if they are rare.
I am sure that many of these side effects are possible but unlikely in the majority of patients.


I called to find out the status of my request-the neuro's office never sent it in:mad::mad: they apologized profusely and faxed it in immediately. I swear...are the patients running things? I should get paid accordingly.

Thanks. I called them today to ask if they received my paperwork from Dr's appointment last week. They said no. I asked if backlogged, he said no..was up to date as of yesterdays paperwork. Its a Friday so Monday awaits. Why do weekends always come at the wrong time? heh

edit - Deb you posted that as I was typing this. Yes I feel your pain.

But these are the things I would take this med to get rid of..Geesh.

I saw my neuro. yesterday. We talked about Ampyra and decided that I'll give it a try.

The paperwork has begun. I'll get the blood/kidney test done next week.

So we shall see.

Cheers,

Niko:cool:

Reason why Acorda didnt have my paperwork was because i didnt see I had to sign/date form 2x! Faxed it yesterday. Let the paperwork wheels begin.

Ampyra works GREAT for me
 

Have been on it almost two weeks. probably 50% improvement in walking speed and duration. amazing. I have heard it takes 3 months for full effect?? Does that mean I will see increasing improvement? does anyone know?

My neuro did not say anything about blood/kidney test. Since I am his first patient that he has prescribed ampyra to, I wonder if he know. I did have blood work a few weeks ago prior to my mri so I think I may be covered.

My neuro didn't either, Barb.

I'm approved and Ampyra's overnighted to my door tomorrow! :)
I sure hope it helps with strength besides walking.

Kicker - still have blood/brushing teeth issue?
Karen - 50% improvement still? Thats exciting! What about arm strength?

Had my pt evaluation last Tuesday. I have not heard anything from neuro or ampyra. I plan on calling my neuro's office tomorrow to check on progress.