I've been on it for just under a month...
At first it seemed like a miracle! I was getting out of bed/chair like there was no problem, dragging rt. foot was decreased, and I seemed to be walking better.
Then about a week or so ago I noticed a return of the sxs...and my stomach is upset, my throat is sore, and I feel crummy.
So when I see my neuro next time, I will ask him whether or not I should stop...:(

Debbie, I have read on other sites where people have been experiencing sore throats, nausea, or headaches for a few days. And it seems to be happening to those who have been on ampyra for a few weeks. While some are stating it has not seemed to help at all, other people that are on it suggest it is helping with lots of other symptoms (fatigue, heat, etc) in addition to walking. Hmmm.

Thankyou for all the feedback so far. I got it today and will start it tomorrow or Thursday.

Sore throats - how much water are you's drinking/day? It helped ALOT with rebif sides when I took R.

Have any of you had white blood cells checked before and now? Like to know effect on WBC and RBC while we're at it.

Good luck Eddie with Ampryra tomorrow. I hope it helps you.:) Keep a journal everyday so you have a complete comparison of the pro's and con's of the drug. Are you still on Ty?

I was going to start a thread about the low mood I've experienced since I started Ampyra...
I began taking an AD again at the end of April due to situational depression, and I'm in therapy again, which helps tremendously. I started on Ampyra the last week of May.
But about 2 weeks ago I started noticing that I was very low, and kind of grumpy. I try to use a lot of techniques I learned in therapy to center my thoughts and let go of these feelings, but it has been extremely difficult...and my neuro has been discussing depression with me the last two visits.
Now it could be tied to my not being allowed into a clinical trial, which occured almost 3 weeks ago, but I feel as if this low mood is kind of chemical-driven, if you know what I mean...doesn't feel situational.
So I'm wondering if anyone has heard of patients on Ampyra who are experiencing depressive/low moods?

:heartthrob: ((((Debbie)))) :heartthrob:

Deb anti d's are a great thing if you ask me. Do you feel angry at all like body builders that take too many "enhancers"? Wondering if ampyra is similiar which would surely increase strength. I didnt start yet. Tomorrow likely. Im busy and want to be able to push my body to exhaustion to see if it really has potential.

Lady yes i'm still on Ty & the MS is still progressing quick. Boohoo!

First dose will be tonight. Has anyone had Sensory improvements? Not being able to tell what im touching with right hand (and left pinky now) is what drives ME crazy. Had the same learning remote for 20 yrs and if I didnt play it like a guitar i'd be screwed. Sensory?

Was turned down by my insurance for ampyra again after pt evaluation. Reason -- I am ambulatory. Based on my average of three 25 foot walk (timed), I barely need a cane. The therapist agreed that I should use a cane when I am outside my house. I guess I walked too fast:rolleyes: My problem is that I can first walk, but then my gait becomes more pronounced and I slow down a lot. I should have scheduled my appointment in the afternoon instead of the morning. My gait also deteriorates throughout the day. They suggested that I might benefit from pt.

The nurse said that once the drug is on the market longer, they may be able to get them to reconsider.

Sheesh, Barb, I can't get it because I'm not ambulatory enough and you can't get it because you are too ambulatory. :rolleyes: