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Old 04-16-2010, 12:44 PM #11
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Aww, nuts, Sal! Sorry about your dumb leg. ((((Sal))))
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Old 04-16-2010, 02:17 PM #12
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Just the usual creepy crawly, tingly, spastic, and general weakness. The biggest thing to me is, that I really can't walk anymore..

Most of my SX are in my legs...the left one, more than the right. As a matter of fact, if both legs were as good as my right one, I'd have little problem walking. I can still stand, hold on and transfer, but can't take more than a few steps.

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Ah Sally,
As one who doesn't really walk, I have to think walking is over-rated. Here, have some sour grapes (Kipling Just So stories). Of course I get bitter but never changes. I can wear what ever shoes I want now, so there.
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Old 04-16-2010, 03:07 PM #13
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Sorry Sally,
Walking very slowly, but still walking. I really feel for ya!! Life just not fair is it. I guess we just have to make the best of it, that we can, if possible. Find the things we enjoy that we can do. It takes a strong person to put up with what you put up with and I applaud you for it!! Deb
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Old 04-16-2010, 05:42 PM #14
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DH is a sales rep for a microphone company. (American Idol uses his company's microphones.) So, we have plenty of sound system equipment for me to blare out my MS anger in the neighborhood.

come over to my house and you can get loud too.
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Old 04-16-2010, 07:18 PM #15
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LOL, Cyn. Maybe I'll get a bullhorn and ride my scooter up and down the street, bellowing all the way.
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Old 04-17-2010, 08:53 AM #16
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wonder how much it would cost to rent a stadium? Get a major sound system set up by Cyn's hubby and just get the word out as loudly as we can.
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Old 04-17-2010, 11:55 AM #17
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Let's have a TV Marathon Event..
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Old 04-18-2010, 05:30 AM #18
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I'm more of a whimperer than a hollerer (good or bad, who knows) but I hear you, Sal, and send you cyber-hugs.

I try not to be gloomy or morbid, but some mornings you wake up and it just hits you: it isn't just the symptoms, though they get pretty old. I have a chronic debilitating disease. Anything can happen. ACK!

First I freak out, then I get mad, then I whimper, then I slap myself (figuratively speaking, of course), work very hard on counting my blessings, and then ratchet up my getting my ducks in a row. Just in case.

Reality stinketh sometimes.
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Old 04-18-2010, 06:36 AM #19
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Let's have a TV Marathon Event.

***********

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I want Jerry Lewis to host!!!!! Then we'll get some recognition - we could be, ah, Jerry's kids!!!!!! 8-}
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Old 04-18-2010, 08:22 AM #20
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I am so in for the yelling, telathons, whatever you pick!!!

woke this morning, did not have to wake but with severe pain low in my lower back... and no matter what position too much had to get up...

I am moving and walking, as you know I run a McDonald's so I move fast and furious there... but then once I sit for a bit or lay down... I get up and hardly can walk... due to stiffness and weakness in the one leg.... and stiffness in my feet... so I look 99 or older at times.... even on baclofen and such..uggg

ok enough of my vent...SALLY HUGSSSSSSSSSSSSSSSSSSSSSSSSSSSSS

and yes it sucks to limit self on things.. due to this stuff.. I do that a lot and getting tired of it... hugss,sarah
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