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#1 | |||
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Member
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Hello everyone,
Just wanted to drop a quick note to say hello...and goodbye for now. Tomorrow I enter the hospital to start the HiCy (Revimmune) treatment. I am both excited and totally scared out of my mind. Not afraid of death (especially as there have been none with this treatment thus far) - just the whole idea of this process is mind-blowing. Then again, this whole MS thing has been rather mind-numbing to say the least. In preparation for my upcoming hair loss, I had my hair cut short. Way short. However, the short is temporary, as baldness will soon follow. I bet at that point I will surely miss the short haircut! ![]() ![]() Tomorrow morning I go to the hospital to have my central line (Hickman line) put in and then I get admitted.....and the first dose will be around 9-10pm........ So if anyone has any good/positive thoughts to send out toward Baltimore tomorrow - please feel free to do so!! I'll take all I can get (yeah, I'm being greedy with this one ![]() Hope everyone is doing well and continuing to fight the good fight (whatever the heck that means). I am the 26th person with MS to go through this process of HiCy at Hopkins...and I believe the most recently diagnosed. Hopefully the docs will continue to learn more about how to keep improving this treatment until it is a cure (or another cure comes around). ~Keri |
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"Thanks for this!" says: | Aarcyn (04-19-2010) |
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#2 | |||
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Elder
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Good luck Keri.
If you get a chance or have access, keep us posted on what you are up to! We'd all love to know how you are doing. If you want to have a point of contact, PM me or someone an email address or phone number. I can pass information along to other members. ![]()
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#3 | |||
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Magnate
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Keri, I wish you all the best, you will be in my thoughts. Let us know, when you can, how your doing.
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Dx RRMS 1984 |
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#4 | ||
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Member
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Keri, I'll be keeping you in my prayers for sure.
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#5 | |||
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Grand Magnate
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You have such courage to get your hair cut and buy a wig in preparation for this treatment. I hope and pray everything goes smoothly for you.
![]() Keep us posted, K?
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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#6 | |||
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Member
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Extra positive thoughts for Keri in Baltimore!
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#7 | |||
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Elder Member
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good luck I see you did decide to go through with it congrats and hope its helpful, godspeed on your return to us bald or not
__________________
. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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#8 | ||
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Member
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Big {{{hugs ))) for you! I wish you success and a great regenerated immune system!!
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#9 | |||
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Grand Magnate
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Keri, good luck with the treatment! I will definitely keep you in my thoughts. I bet you will be beautiful bald!
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#10 | ||
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Junior Member
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Hey Keri- You'll be fine and in 3 months it will seem like MS wasn't even real.
I do suggest you go bald bald all the way by Day 10. I tried to do what you did and when the hair comes out it gets in everything! It was like a barbers chair all the time. I made it one day and cut it all off! Congrads your MS is just a couple of days away from being gone!! |
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