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-   -   HiCy tomorrow (Thursday) (https://www.neurotalk.org/multiple-sclerosis/49168-hicy-tomorrow-thursday.html)

RedPenguins 07-02-2008 10:23 PM

HiCy tomorrow (Thursday)
 
Hello everyone,

Just wanted to drop a quick note to say hello...and goodbye for now. Tomorrow I enter the hospital to start the HiCy (Revimmune) treatment. I am both excited and totally scared out of my mind. Not afraid of death (especially as there have been none with this treatment thus far) - just the whole idea of this process is mind-blowing. Then again, this whole MS thing has been rather mind-numbing to say the least.

In preparation for my upcoming hair loss, I had my hair cut short. Way short. However, the short is temporary, as baldness will soon follow. I bet at that point I will surely miss the short haircut! :eek: I do have a lovely wig though :cool:

Tomorrow morning I go to the hospital to have my central line (Hickman line) put in and then I get admitted.....and the first dose will be around 9-10pm........

So if anyone has any good/positive thoughts to send out toward Baltimore tomorrow - please feel free to do so!! I'll take all I can get (yeah, I'm being greedy with this one :p)

Hope everyone is doing well and continuing to fight the good fight (whatever the heck that means). I am the 26th person with MS to go through this process of HiCy at Hopkins...and I believe the most recently diagnosed. Hopefully the docs will continue to learn more about how to keep improving this treatment until it is a cure (or another cure comes around).

~Keri

tovaxin_lab_rat 07-02-2008 10:36 PM

Good luck Keri.

If you get a chance or have access, keep us posted on what you are up to! We'd all love to know how you are doing. If you want to have a point of contact, PM me or someone an email address or phone number. I can pass information along to other members.

:hug:

Snoopy 07-02-2008 10:38 PM

Keri, I wish you all the best, you will be in my thoughts. Let us know, when you can, how your doing. :hug:

Desinie 07-02-2008 11:19 PM

Keri, I'll be keeping you in my prayers for sure.

Twinkletoes 07-02-2008 11:19 PM

You have such courage to get your hair cut and buy a wig in preparation for this treatment. I hope and pray everything goes smoothly for you. :hug:

Keep us posted, K?

Ivy2 07-02-2008 11:26 PM

Extra positive thoughts for Keri in Baltimore!:)

weegot5kiz 07-03-2008 12:29 AM

good luck I see you did decide to go through with it congrats and hope its helpful, godspeed on your return to us bald or not

starfish 07-03-2008 02:12 AM

Big {{{hugs ))) for you! I wish you success and a great regenerated immune system!!

barb02 07-03-2008 08:10 AM

Keri, good luck with the treatment! I will definitely keep you in my thoughts. I bet you will be beautiful bald! :hug:

chrishadms 07-03-2008 08:39 AM

Hey Keri- You'll be fine and in 3 months it will seem like MS wasn't even real.

I do suggest you go bald bald all the way by Day 10. I tried to do what you did and when the hair comes out it gets in everything! It was like a barbers chair all the time. I made it one day and cut it all off!

Congrads your MS is just a couple of days away from being gone!!


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