i feel horrible all the time...i still stumble, i tend to list to the right, just like i did before I was on the Rebif, but now this time, I can't put my finger on it, but my body is reacting to the drug. I haven't started or stopped any of my other meds, so I know it's connected to the Rebif in some way. Anyone have any problems with Rebif in this way or have any advice for me? It's impossible to get in to see my neuro...he is always 5 to 6 months out, and I ask, but never get, put on the cancellation list, even though I am open all day, every day. They have one person that seems to derive pleasure from yelling at me every chance she gets, if I have to change my appointment with him, or didn't call one minute before I HAD to call, she yells at me. I don't know how to approach him and tell him if I have to deal with her then I will find a different neuro to go to. I don't need a drill sargeant yelling at me in the middle of the hallway with people walking past me and her and looking at me like what did you do? Staff members just turn away, and I am not allowed to voice my concerns about this woman. I am thinking that I should just go to my regular dr and ask her to find me another neuro because I refuse to be in an office where the bomb lady works. I wonder if she treats other people in the same brash, loud, offensive way. Maybe they should get rid of her and hire someone who has more empathy for people. Gosh, I guess I needed to say that cuz I really didn't want to go to that office again. Any advice about the Rebif would be welcome.

Hi Jewels,
First, I would never put up with that behavior from anyone. Neuro, assistant, nurse or reception person on the phone, or in person.

That is totally uncalled for and very demeaning. Sounds like a non-caring person who rather be somewhere else than at work.

You pay for seeing a doctor you don't have to take the put-down, not on the phone either. Get a new Neuro, then quit this one. JMO

As for the Rebif, I was on Avonex, so can't help you there. I do know that when people go off their meds they have to start over with the side effect symptoms again after about a 5 to 6 month reprieve.

If you feel the drug is not helping you, and you feel worse on it, then maybe it is time to switch to another one. Or cut the dosage in half to 22 instead of the 44 it has.

I am sure someone will come along with experience with Rebif to help you.

Nice talking to you Jewels.

I don't know if it's exactly the same, but I was on Rebif for about half a year, and was much sicker on it than I ever was from MS alone. They switched me to Copaxone, which did nothing, then to Tysabri, which helped a LOT without making me sick. As for the crazy woman at your neuro's office, I'd ask him about her directly next time you see him. If he can't/won't do anything about it, find another neuro. Just be sure to let them know exactly why you're taking your business elsewhere.
In the meantime, I hope you start to feel better!

I was a lot sicker on Beta than off it.

as for your neuro, I would tell her where to shove her attitude and just find someone else. end of.

I've been on Avonex, Copaxone, and Beta...was waaaay worse on them than with MS. With the beta, I missed 4 weeks of work b/c I couldn't even walk from one end of my house to the other. I would definately talk to the neuro.

I would also definately talk to him about the dragon lady. No one deserves to be treated that way. Is there an office manager you can speak to? I know my neuro told me that if I ever had any problem with anyone in the office to talk to the office manager first and him (the neuro) next.

Good luck and feel better!