Not quite sure what to make of this. I've never been called back after having any test results done. Usually I've been called back and told- "inconclusive" "negative" "no findings", etc.

I called both neurologists assistants on Friday (thursday had both tests- ENG/MRI) to follow up when the doctors would read my tests. Luckily I did or they would have had me wait for 3 weeks with the ENG report and another week/two for the MRI. That is just how they both do things due to being over worked, understaffed and too many patients. I explained to both assistants how awful I've been feeling, etc. and they said they would help me out- and they both did.

The neurologist who read the ENG test read it last Friday. He spoke with the PA's assistant, hand delivered the ENG test to him, told him to schedule an appointment so I can see the PA about my ENG test results and told the assistant to make sure the PA reads the MRI immediately. This is a first for me. Never has a doctor followed up like that with anything- ever.

So, I'm not quite sure if that is a good thing, or a bad thing, or what on earth to think of it.

Can someone tell me some thoughts as to what this means. Maybe it means nothing. Has this ever happened to any of you out there when you were first diagnosed?

Please help. I need some guidance. I'm scared. Need answers. Need some hope at the same time for relief of my symptoms. Not sure what on earth to think at all.

Thank you.

Coffeegirl

it could mean many things. the best thing is to NOT freak yourself out about it.

why were you having these tests anyway? rule out MS? or an exacerabtion of MS?

It may be that you have a lesion on your MRI and lesions can be caused by many things other than MS, but MS is certainly one of them.

Medicine is the process of ruling things out. There are more than 100 diseases that can mimic MS including the lesions, and frequently it takes time, and patience to rule them out. They start with the easy things like Vit B12 or Vit D def on blood work. Lyme, Lupus and other things that can show on blood work. Then once at the bottom of the pile, they are normally left with a small handful of possibilities. After a couple of MRIs or exacerbations proven in clinical records, they work their way down to MS. its usually one of the last things considered after they rule out the many other things.

Please, dont panic. MS is almost never an emergency, even if it feels like our world is coming apart because of it.

When is your next appointment? Till then do some homework. Read up on what is MS, contact the NMSS.org. Pull up a chair and share with us. We are good at helping folks wait out the tests.

Sounds like there may be something on your tests, that shows something worth talking about. I'm glad they are finally paying attention.

I hope you get your answers soon.....and please let us know, OK?

The PA hasn't read the MRI results yet. The neurologist has read the ENG test and that is where they have found something. He is concerned what the MRI will be like. He wants the PA to read the MRI asap this morning. This is what bothers me.

Don't get all twisted about this...you won't know what's going on until you see them. So try to breathe, distract yourself, and know that you'll eventually find out what's going on.

I know it's easy to say this...but I've been there after several years of having one thing after another blamed for my sxs, until I had a bad enough exaserbation to get them to dx MS.

Try to stretch, do relaxation breathing, and be as active as you can until you go in.

And know that we're all here for you with info and hugs

i agree. try not to get too anxious about this. of course that's not easily said. i remember the waiting was very hard to find out about results.

you can go to the place where your mri was taken and sign a release to get a copy of the radiologist's report. you might not understand it but when i got mine i asked the dr to explain it.

i hope the PA isn't the ONLY person to read your mri. i doubt it. the radiology dr has to write a report.

please keep us in the loop.
whatever the results we will be here for you.

It's very hard to wait for results, and all my docs have a system to freak one out even a bit more. Letter sent for normal results and a call otherwise. Doesn't help that I'm usually the one that misses their call and have either all night or all weekend to freak out.

So know what you're feeling, but agree with the others about taking a breath and trying not to feel too anxious. Let us know what they say.