This is amazing. This sweet lady put up her videos of how she walked and moved around before the CCSVI procedure, and then 1 day after the surgery, how she walks and moves now. She is incredible and is willing to answer all your questions.

DENISE MANLEY BEFORE CCSVI LIBERATION SURGERY. THIS VIDEO WAS TAKEN 2 DAYS AGO.

http://www.youtube.com/watch?v=lvwCuPXrKgI


DENISE MANLEY LESS THAN 24 HOURS AFTER CCSVI LIBERATION SURGERY YESTERDAY

http://www.youtube.com/watch?v=KYNhYtVojSQ

Must watch and listen..

Cool, Lady, Thanks. I hope it works like that for a lot of MSers..

Her first video looks all too familiar to me. The second one gives me a lot of hope. Wow, just 24 hrs after surgery? That's pretty amazing!

I was impressed enough that I'm asking my doctor and/or my neuro about it the next time I see them.

I'm getting IVSM this week, so I have to follow up with both doctors after that, so I'm seeing what kind of research I can dig up. I dont think my neuro will be bothered to read it, but I'm pretty sure my regular doctor will be interested. (his dad has MS)

I'm not real eager to have someone do any surgery around my neck, but if it helps make my symptoms improve, that would be cool.

I still want to see a lot more successes before I'd have the surgery.

Amazing! I can really relate to that first video. I kept saying "that's how I move"!! I'm so happy for her.

I wish I could get more specifics, i.e. where she is and who was her doctor. I am trying to find out more but was unsuccessful.

I want you all to go and have the procedure.

I want to find out how it goes from people in this forum. You have credibility for me and if you meet with some success, I will know that CCSV is a viable option for us MSers.

I want testing to go on at Mayo. I keep wondering why the MN and AZ hospitals are not doing any research. Maybe they are, I just do not know really.

I watched the first YouTube videos of that woman. Then I saw her jump. It has been a long time since I was able to simply jump.

I don't care if it lasts a long time. I have just wanted something, if only for a day.

I am watching carefully. If it was in my neighborhood and by a doctor who understood what to do, I would pay money.

I want.

I agree with everything you said, except for your highlighted words. I would go over the deep end, if I had it all back for a day or even a week or month and then went back to the way I was. NOOOOOOOOOOO way!!!

Hey Sal - I still would take a day without symptoms, even if I knew there was only those 24 hours. It would not make me crazy at all, just resigned which is where I am mentally as of this moment.

To walk normally, to jump for joy, to dance goofy. To have a moment without the numb feeling, the spasms in my legs.

Yes, I watched that woman get so excited to jump. It hit me very deeply. It made me sadder than usual.

This week I'm feeling like that woman looked in the first video.

I dont like this feeling at all. I especially dont like it right now because there are houseguests in my house that seem to think that I can control these symptoms. I also dont like it because I dont know if this will ever go away.

I'm going to go do a follow up with my regular doctor about the steroids (neuro had my regular doctor do the Rx-ing of my IVSM because he was going to be out of town and wouldnt be available to help me if there was a problem)

I think when I do the follow up with the regular doctor, I'm going to ask him if I can have an MRI (in the really big giant open machine that one of Omaha's hospitals has...) I want to see if this was a back problem from a chronic back problem, or if it was from the MS, or a combination of the two. (I'm leaning towards it being an MS thing because of how crappy I feel)

But, while I'm in there, I'd like them to look at the veins in my neck. (isnt part of the investigation for the stenosed veins an MRI?)

I might not have the surgery immediately, but I would like to know if there was a problem that I could potentially deal with later.

I just dont like feeling like that woman looked in her first video. I'd like to feel like I did a couple of weeks ago instead. I felt great then.