[Erin524]

The numbness is back!

This time it's mostly on the left side. (when the flare started in late April, it was on the right side and made it's way up the left)

It's not as bad as it was last month, mostly just an irritating bit of numbness, and it's not painful (yet!) Just annoying. I am noticing a bit of stiffness coming back (knees feel weird and tight, toes feel a little "curly") I feel like I'm not walking straight again. Did some PT yesterday and my heel-to-toe was more like toe-to-side-of-other-foot-and-fall-into-the-wall than it was heel-to-toe.

How happy am I that I have a neuro appointment tomorrow? I'm not really that happy, but glad that I actually get to see him and he'll be able to examine me and find out if I need a new batch of 'roids or not.

I dont know if it's the same flare coming back for another crack at me, a new flare, or if I did way too much yesterday. I did a ton of laundry that I couldnt do the last month because I was sick or my sister was hogging the washing machine, and then I went to PT and they beat me up. I felt like I'd been run over by a car when I got home. And then I did more laundry AND cleaned my room and folded a ton of laundry to put it away.

I just dont know if I did too much and angered the MS trolls responsible for my torture. I'm getting some funky toe spasms in my left foot that are bugging me, and the outside of that foot is almost completely numb. (hope I can drive to the neuro tomorrow)

I thought the steroids would last longer than a month. (last bag of IVSM was on May 6th, last oral steroid was May 20th) I still hadnt been feeling all that great, and was still numb for most of May, but was starting to feel better sensation-wise (numbness was receding) a couple of weeks ago, and I wasnt falling asleep every 2 seconds.

I've been so tired the last couple of days. I fall asleep whenever I sit down. (left leg and butt go numb when I sit down too) This morning, I woke up feeling kind of queasy and thought I was going to be ill. Had a stomach ache and felt like I hadnt slept at all. (which is possible...think I fell asleep around 4am and woke up at 930am)

Feel a little bit like my legs dont want to move well when I walk. Back hurts a lot and my neck hurts too.

I also had a few minutes of a weird double vision tonight. Instead of being side to side, it was horizontal. Saw an airplane flying by tonight, and there was a double image of it underneath the plane. Rubbing my eyes didnt help that much, but it seems to have gone away now. My eyes feel really tired tho.


This is just not fair. I was hoping those steroids would last a lot longer. (the IVSM was 3 days, 1 gram a day. The oral steroids were a taper, starting with six 10mg pills x 3 days, that tapered down by 1 pill every 3 days. Actually started the oral steroids before I switched to the IVSM, and picked up where I left off on the oral after the IVSM was done)

I'd like to say lots of expletives now, but I dont want to get kicked off the forum for having a potty mouth. So, just imagine that I'm mad and cussing up a storm.

[Judy2]

So sorry you're facing the MS monster again, Erin. It sure seems to me that the steroid results should be lasting longer. Sometimes they take awhile to work, but not wear off so soon???? Maybe you're right in thinking you did too much on a good day!! They're so rare, it's hard not to take advantage of feeling somewhat "normal".

Good luck at your neuro appointment! Hopefully you'll get some answers!! I HATE THIS DISEASE!!!! Take care.........

[Erin524]

I want to go to sleep, but my "friend" Insomnia is here and wont leave me alone!

My head hurts now, my eyes feel kind of funky and blurry and a little twitchy. (little photosensitive too. computer is making my eyes water) and my neck kind of hurts. (maybe I picked up too much heavy laundry yesterday among having to do PT stuff yesterday?)

I'd love to sleep, but a little worried that I'll have something new to show to the neuro in the morning. Not sure I want to do more steroids...kind of tired of bruises and cuts taking forever to heal because the 'roids suppress the immune system somewhat. I still have the bruise from the IVSM and the last IV was May 6th!

I think I'll try again to sleep tho...hope I have the time and energy to shower in the morning. Hope my toes are awake too.

[legzzalot]

Good luck today Erin. So sorry for the crappy monster attacks. Hopefully your neuro can give you some kind of insight as to what's going on and how to fix it. Or at least make it somewhat bearable. Hoping you just overdid it yesterday, and your body wil stop attacking you.


ps if your neuro finds a way to fix the numbness, please have them call my neuro and tell her. Maybe we can get them together for a play date.

[Snoopy]

Erin, Many neuro's will not rx steroids for sensory symptoms. Numbness can remit on it's own and some have numbness as a permanent symptom. Steroids can also be a temporary solution to an on going symptom.

To be considered a new relapse there needs to be 30 days between the last relapse and the new.

[Dejibo]

Im sorry you dont feel well Erin. Hang in there.

[kicker]

Ah Erin,
I hope you feel better SOON.

[FinLady]

Erin, sorry to hear all this.

Snoopy is unfortunately right. Many neuros won't prescripe 'roids for sensory stuff unless a leison is active. I've never had an active leision, so haven't done IVSM.

Hope the neuro can give you some good advice. Hang in there!

[Twinkletoes]

Bummer, Erin. So sorry for your maladies. Hate it when Snoopy's right, too.

Let us know what the neuro says, k?

[SallyC]

(((((((Erin)))))))