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Old 06-04-2010, 02:13 AM #1
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Erin524 Erin524 is offline
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Join Date: Dec 2007
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Erin524 Erin524 is offline
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Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default Well, that didnt last long, did it?

The numbness is back!

This time it's mostly on the left side. (when the flare started in late April, it was on the right side and made it's way up the left)

It's not as bad as it was last month, mostly just an irritating bit of numbness, and it's not painful (yet!) Just annoying. I am noticing a bit of stiffness coming back (knees feel weird and tight, toes feel a little "curly") I feel like I'm not walking straight again. Did some PT yesterday and my heel-to-toe was more like toe-to-side-of-other-foot-and-fall-into-the-wall than it was heel-to-toe.

How happy am I that I have a neuro appointment tomorrow? I'm not really that happy, but glad that I actually get to see him and he'll be able to examine me and find out if I need a new batch of 'roids or not.

I dont know if it's the same flare coming back for another crack at me, a new flare, or if I did way too much yesterday. I did a ton of laundry that I couldnt do the last month because I was sick or my sister was hogging the washing machine, and then I went to PT and they beat me up. I felt like I'd been run over by a car when I got home. And then I did more laundry AND cleaned my room and folded a ton of laundry to put it away.

I just dont know if I did too much and angered the MS trolls responsible for my torture. I'm getting some funky toe spasms in my left foot that are bugging me, and the outside of that foot is almost completely numb. (hope I can drive to the neuro tomorrow)

I thought the steroids would last longer than a month. (last bag of IVSM was on May 6th, last oral steroid was May 20th) I still hadnt been feeling all that great, and was still numb for most of May, but was starting to feel better sensation-wise (numbness was receding) a couple of weeks ago, and I wasnt falling asleep every 2 seconds.

I've been so tired the last couple of days. I fall asleep whenever I sit down. (left leg and butt go numb when I sit down too) This morning, I woke up feeling kind of queasy and thought I was going to be ill. Had a stomach ache and felt like I hadnt slept at all. (which is possible...think I fell asleep around 4am and woke up at 930am)

Feel a little bit like my legs dont want to move well when I walk. Back hurts a lot and my neck hurts too.

I also had a few minutes of a weird double vision tonight. Instead of being side to side, it was horizontal. Saw an airplane flying by tonight, and there was a double image of it underneath the plane. Rubbing my eyes didnt help that much, but it seems to have gone away now. My eyes feel really tired tho.


This is just not fair. I was hoping those steroids would last a lot longer. (the IVSM was 3 days, 1 gram a day. The oral steroids were a taper, starting with six 10mg pills x 3 days, that tapered down by 1 pill every 3 days. Actually started the oral steroids before I switched to the IVSM, and picked up where I left off on the oral after the IVSM was done)

I'd like to say lots of expletives now, but I dont want to get kicked off the forum for having a potty mouth. So, just imagine that I'm mad and cussing up a storm.
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