I still feel FUBAR.

I'm tired, sore and the MS trolls in my head are not letting me sleep. I'm trying to drug them into submission with ativan. It's not working...wait...maybe...nope.

A bomb could go off right now, and I'm calm enough that I'd just look over and critique the special effects and complain a little about the noise, but I probably wouldnt get up because the ativan has me calm...just not sleepy enough to let me sleep.

I'm going to attempt the sleeping again...I wish my Kindle book I just bought had the text-to-speech enabled on it. If it were, I'd have the kindle read me a story. The droning monotone of the computer voice it reads with would have me out pretty quickly probably.

ok, time for lap two on the sleeping attempt.

Erin, Hope you're sleeping. At 5:30 Pain got me out of bed again.

I slept some. Spasticity woke me up at 8am. That was unpleasant.

I'm waiting for the baclofen I just took to kick in before I try to lay down again.

I hate spasticity.

edited to add

cant fall asleep. My diaphragm (sp?) feels like someone is twisting it. Making my breathing feel weird. I'm not feeling a hug, just stiffness in the diaphraghm (too early for me to look up how to spell that word) took some baclofen for the Mother of All Charley Horses that woke me up at 8am. Hoping it'll help the stiffness when I breathe now too.

I get the feeling I'm not going to get any more sleep. argh!

I got woken up this morning by some impressive spasticity.

It was in my right leg, and in my diaphragm. Took some baclofen and that helped the leg, but my stomach feels bad...really tight, and making me feel like I cant breathe. I think I'm actually breathing, but the sensation in my diaphragm is really uncomfortable.

I called my neuro's office (he's not there till the 21st) One of the other neuros there called me back. (think I might be switching to this guy for my neuro) I chatted with him about the problem for a few minutes. He actually offered me more steroids (tempting!) or some Valium.

my dad, a nurse anesthetist, had actually said something about valium last night, that I should ask for some to use, since he thought it was better than ativan for some symptoms. I dont remember why my dad thought I should get some...think I was talking about the pain in my neck at the time. Apparently valium has a muscle relaxer in it. So when the doctor suggested it, (I'd forgotten my dad mentioning it till I was offered it) I decided to go for that. I was really tempted to do the 'roids, but hate the taste of those...and the side effects of prednisone really really suck and I didnt want to make my insomnia any worse than it is.

Hope I dont end up with a Rx drug problem from this stupid MS making me hurt/not sleep all the time. I just dont want to do 'roids again for awhile. Hate the taste of prednisone!

Erin,

Just wanted to let you know that I am thinking of you and saying a small prayer you feel better soon (in all ways). Fell better kiddo!

hugs
jane

I saw my regular doctor today.

He's ordered a B12, TSH (or is it THS?...testing my thyroid test), and a CBC test. My dad (a nurse anesthetist) said that the CBC looks at all sorts of stuff, like looking to see if I have an infection somewhere, and seeing what my white blood cells are doing.

I just wanted to see if there's some other explanation for the ever-so-craptastic fatigue that seems to be sucking all my energy out of me thru my toenails. (really, it feels like all my energy runs out thru my feet when I'm standing)

So, I wont get a B12 shot till after they get the blood tests back.

This doctor also said something surprising to me. Every time I go see him...I ask about LDN. Lately I've been telling him "ok, here's my mandatory question about the LDN". Know what he told me. He said for me to go on the internet and see if there are any trials or any doctors online willing to Rx it.

what...wha?? huh? *blink blink* I think he basically just told me to go get a Rx from someone who will Rx, even if it's over the internet. So, he pretty much just told me it was ok with him for me to get a Rx for it...just not from him.

Holy cowpies! I've got to look up someone on the internet now and see if I can find someone who will do a phone consult to get me some LDN!!

I just tried some Valium that I got from the neuro's office this morning. (finally got to the pharmacy to pick it up) Got home and got the pill splitter out and broke a pill into 1/4ths. (pills are really low dose, 5mg each) Took one of the 1/4ths and I think I just felt that kick in. Some of the spasticity in my diaphragm let up...my neck still feels like a tangled ball of nerves and muscles, but I think I feel it helping the Hugging sensation.

I hope the Valium helps me sleep tonight. I might do a half pill for that.

I scheduled some PT for myself next week. Both the substitute neuro and my regular doctor said for me to do a lot of stretching and try to exercise and do stuff. I'll try it. I know I wont like it, but I'll try it.

My left hand feels really weird. Kind of like it did after I broke it when I was a kid, and I tried to go swimming an hour after getting the cast off and my hand was so weak I had to swim one handed. (swam in circles) I guess I have a little weakness there. It's in my shoulder too.

I hope you feel better soon...severe spasticity is no fun and has sent me to the ER a few times. I found that sometimes its the only relief.

I am sending you plenty hugs and wishes that you get relief.

Thank you.

I think the 1/4 pill was enough to lessen the annoyance some...I think tho, I'll be taking a 1/2 pill when I go to bed.

Wish it would work on the pain in my neck. I guess I'll get back to physical therapy next week for that. Hopefully the fatigue will let me.