FAQ/Help |
Calendar |
Search |
Today's Posts |
|
![]() |
#1 | ||
|
|||
Junior Member
|
Hi,
I was diagnosed last July 15. I cannot believe it has been a year already. I had double vision. Mid Sept. I started Rebif. However, due to a decreased white count I was only on the full dose for a month. I have been on the 22mcg dose. I have not had a relapse since last July. My white count is starting to drop on the 22mcg dose, so I am seriously considering stopping the Rebif. If I had to do it all over again, I don't think that I would have allowed the doctors to talk me into starting a DMD. Personally, I believe that not having a relapse over the last year had nothing to do with the 22mcg dose of Rebif. When I first started Rebif, I did a slower titration over 4 months and one of my doctors told me that I really needed to get on the full dose so that I would not relapse. Now that I can't take the full dose, I am told that 22.2mcg also works, too. It can be confusing. I don't want to go on Copoxone due to the IPIR reaction. I live alone in a very rural area. During the winter, it can be difficult to get out, so if I needed 911, it could be a problem. Anyway, I am interested in hearing other opinions about this. Looking forward to meeting others. |
||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Co-Administrator
Community Support Team
|
Bumping up for new member.
__________________
Search the NeuroTalk forums - . |
|||
![]() |
![]() |
![]() |
#3 | |||
|
||||
Wisest Elder Ever
|
Hi Sunflowers! Welcome to NT!
I was on a couple of the DMD's when I was first diagnosed. They made me feel worse than I already did. BTW.....double vision was my symptom that got me diagnosed, too. Have you considered LDN? I've been on it for a couple of years and it's been a Godsend. Here is a link to the LDN thread here........http://neurotalk.psychcentral.com/thread71392.html
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
![]() |
![]() |
![]() |
#4 | |||
|
||||
Grand Magnate
|
Welcome Sunflowers. I am not sure how to respond regarding the rebif issue. I guess I would stay on it as long as I could tolerate it. What does your doctor say about your blood count?
|
|||
![]() |
![]() |
![]() |
#5 | |||
|
||||
In Remembrance
|
Welcome again, Luv.
![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
![]() |
![]() |
![]() |
#6 | |||
|
||||
Elder
|
Hello and Welcome!
![]()
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
|||
![]() |
![]() |
Reply |
|
|