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Old 06-16-2010, 06:34 PM #1
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Hi,
I was diagnosed last July 15. I cannot believe it has been a year already. I had double vision. Mid Sept. I started Rebif. However, due to a decreased white count I was only on the full dose for a month. I have been on the 22mcg dose. I have not had a relapse since last July. My white count is starting to drop on the 22mcg dose, so I am seriously considering stopping the Rebif. If I had to do it all over again, I don't think that I would have allowed the doctors to talk me into starting a DMD. Personally, I believe that not having a relapse over the last year had nothing to do with the 22mcg dose of Rebif. When I first started Rebif, I did a slower titration over 4 months and one of my doctors told me that I really needed to get on the full dose so that I would not relapse. Now that I can't take the full dose, I am told that 22.2mcg also works, too. It can be confusing. I don't want to go on Copoxone due to the IPIR reaction. I live alone in a very rural area. During the winter, it can be difficult to get out, so if I needed 911, it could be a problem. Anyway, I am interested in hearing other opinions about this. Looking forward to meeting others.
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Old 06-17-2010, 11:47 AM #2
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Bumping up for new member.
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Old 06-17-2010, 12:12 PM #3
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Hi Sunflowers! Welcome to NT!

I was on a couple of the DMD's when I was first diagnosed. They made me feel worse than I already did. BTW.....double vision was my symptom that got me diagnosed, too.

Have you considered LDN? I've been on it for a couple of years and it's been a Godsend. Here is a link to the LDN thread here........http://neurotalk.psychcentral.com/thread71392.html
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Old 06-17-2010, 01:05 PM #4
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Welcome Sunflowers. I am not sure how to respond regarding the rebif issue. I guess I would stay on it as long as I could tolerate it. What does your doctor say about your blood count?
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Old 06-17-2010, 01:52 PM #5
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Welcome again, Luv.
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Old 06-17-2010, 03:29 PM #6
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Hello and Welcome!
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