Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-23-2010, 07:01 AM #7
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I have not made this decision lightly, or half heartidly. I have done my research, and I have seen that when I take (unathorized) breaks from the meds, about 2 weeks in, I start to feel better. My skin clears, I can blink my eyes without feeling like the lid is going to rip off my eyeball. I have energy, I can think again!

I have always said that i feel like I catch on a second or so faster than the rest of the world, yet while on C I feel like I am always standing here going "huh?!" I cant get my brain to work!

I would love to hear Freeinhou's research about C. I know it has about a 30% chance of possibly preventing the next relapse, and should that relapse happen, it has about a 10% chance of making it less severe. well, if I keep shooting it has a 100% chance of keeping me house bound, non driving, and itchy skinned, with a fuzzy head full of stuff I cant do anything about.

I LOVE taking care of my house, but I have felt so crappy I have hired girls to come do it for me. I LOVE taking care of my garden, but I havent dug in the dirt in 2 years. I LOVE driving, but havent felt safe while taking this stuff. When I stop taking it, I am raring to go, and actually want to do the stuff I left behind.

I feel like a quitter. I did massive rounds of Chemo and there was a point to it, and a count down. There was a begining, and an end to it. 5 more to go. 4 more to go 3 more to go. you could take the side effects because you knew there was a point, and an end to it. There is NO end to this! Its like being on permenant chemo! I hate to explain it that way, but the fatigue, the nausea, the hair loss, the damage to my poor little body. I want the courage to just stand up and say NO MORE!

The lectures I have received by the medical community have made me feel like I am letting them down. Like I am quitting on them, and they wouldnt have quit on me. That I am being stubborn, and risking life and limb to simply quit one of the best meds available to treat a disease that many begged years, and years to get treatments for. One MD actually said I was giving up on all those that worked so hard to get these meds on the front line of treatment.

My b/d is Friday. I have an appointment on 7/7. I promised myself that I would figure it out by my b/d and put it into play by 7/7. Im just so tired, confused, wrung out.

its hard to quit. cause I am not a quitter.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (06-23-2010), dmplaura (06-26-2010), hollym (06-23-2010), Lady (06-23-2010), SallyC (06-23-2010)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
It's so hot the chickens are laying hard boiled eggs pud's friend The Stumble Inn 9 01-09-2010 08:17 PM
Pin and needles again Melina Trigeminal Neuralgia 4 11-15-2008 04:34 PM
Bowling LAYING DOWN!!! beautytransforming The Stumble Inn 9 04-22-2008 07:09 AM
Needles Hippyhair Reflex Sympathetic Dystrophy (RSD and CRPS) 4 08-05-2007 06:34 PM


All times are GMT -5. The time now is 08:28 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.