Hi coffeegirl!

I don't have any other suggestions to add, just wanted to say hello and hang in there. It's so frustrating, isn't it, when you're told, "It's all in your head". Right -- NOT! Take care and please keep us posted on your progress!

Sorry you're suffering so, CG.
My first neuro decided I had migraines and gave me meds for that...which gave me migraines and made me feel so horrible I wanted to hang it up...

It took me 3 years and another neuro, with some severe spasms before I got a dx. That neuro passed me off to his NP, who poo-pooed my sxs and didn't call back for at least a week when I'd call with problems.
Someone here recommended my current neuro-I finally got one that listens and takes me seriously.
I hope you take the others' suggestions-esp about the eye dr.
Come on here and vent away-many of us have been through years of what you're experiencing and understand how frustrating it is...

no advice, you got some good stuff above. just hugs

Seek another opinion, change docs, try to find an MS specialist. I echo what others have said. My first two neuros said it was peripheral neuropathy, but my MS specialist said that was dead wrong. Right now I am stuck at transverse myelopathy, but he acknowledges that there is something going on in my spine, despite no lesions so far.

And as for others being critical of you because you "look normal" . . . almost to a person we all look good! We look better than we feel, and that is part of the process. We have an invisible disease/disability. But remember you must take care of YOU first.

Hugs to you. It is frustrating. I am in the same loop you are right now . . . no real answers,and treatments that do not seem to be making much difference.

i'm so sorry you're going thru so much right now.
you're more than welcome here even if you don't have a dx.
we understand and you can talk to anyone here openly.

i'm a nurse and still have drs that can be dismissive. if you can't measure it on a lab test or see it on a physical exam it must not be true kind of mentality.
and, women can get a lot of...it's all in your head or it's hormones. that's just a cop out when drs won't look further than their face for real dx's and answers.

now that i'm off my soapbox my advice would be to try coming off the med you think is giving you the most side effects. tell your dr so he can give you instructions on how to best do it. then see if you feel better.

i hope your new neuro will really listen to you and validate you. that's the sign of a good dr.

please don't give up. could your sister or your dh go with you to your appt?
sometimes when someone else supports you the dr will see you as more credible.

we're here for you. i hope you get to feeling better and will find the answers you need.