This is not the first time I've posted here. I've been here numerous times about the symptoms I've had over the last five years. My neurologist has passed my symptoms over the last few years with migraines. His PA recently sent me to a neurotologist who dx'd me with MAV (migraine associated vertigo).

However things have only worsened since I've seen the specialist. He referred me to a PT for MAV treatment. The PT treatment is common to make a person's vertigo worse but will become better later during the treatment. But, the treatment has became so severe I have had more days bedridden this summer than I've been out of the bed. I've called the specialist and he has changed my medication. It helped for two weeks only then to get worse-again and this time, to the point where now I am having problems eating and am to the point where I can eat limited foods.

I have an appointment with my regular neuro on Thursday. This afternoon I called the specialist because I'm so miserable. For the last 4 weeks I've had ear pain and vision problems. The ear pain has subsided but the vision problem has become scary. It is happening daily. I'm afraid to drive anywhere. My vision is blurry infrequently and I never know when it will happen or when the vertigo will become extremely debilitating- or when I will fall.

Over the last few weeks I've had 3 falls that were bad enough to cause physical damage to my body- scraps, purple/black bruises and one trip to the outpatient clinic to determine if I broke some ribs. Luckily I just tore up the muscles in the ribs- but 3 weeks later- they still hurt when I lay on my back and breathe. And, I loose my balance and coordination so much during the day that when I'm walking it is very common for me to run into the walls or furniture or trip on the stairs.

Not sure what is going on- or if I they will do another MRI/CT. I'm just very irritated. I've had mono twice when I was in high school. I have a lot of MS symptoms. My body feels like it is falling apart. I just want to crawl in a hole and not wake up. That is how crappy I feel. It sucks not being able to feel 'physically' good and able to do anything with your family and not being able to have any answers. I hate this and want some answers and since 2005 I've been through hell trying to get them thru doctor after doctor and have been ridiculed, etc. from numerous doctors.

I know that many of you have been through the same run around of doctors getting dx'd for years. I don't know what is wrong with me or if I belong here. Right now, I don't think I have the right dx and I don't think I'm being treated with the right medications either. Not sure if I'm with the right specialist either. I just want to scream at the top of my lungs- feel like I'm going nuts.

None of my friends or in laws or family except my sister and DH knows about this. We don't want them to know because it is just a 'whining story' to them. They won't understand- because 'I look normal' to them. Why would they think anything is wrong with me? My sons know otherwise- they have seen me bedridden, fall and sick to my stomach and not eat.

Thank you for listening to me babble and whine. I needed to vent and I have no one but my DH to talk to and I feel like I'm driving him nuts.

Coffeegirl