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Old 08-25-2010, 08:06 PM #1
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Oh sure so you think it's okay to just quit?!? Fine - then I quit too!!! We can all quit and be a bunch of quitters.
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Old 08-25-2010, 08:23 PM #2
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You know all joking aside, I don't think I have ever felt so absolutely defeated by life as I do right now. The doctors are scartching their heads over the Thyroid going crazy again, yet a google serach for the cocurrenece of Graves Disease and MS tell me that one of the main triggers of Graves Disease is immune supression therapy most commonly Beta Interferon.

Each doctor is telling me I am on too many meds, yet they keep writing prescriptions. Been fighting with SSDI idiots since june of 09 and still not getting anywhere with them.

The bones in my back keep breaking form the sheer pressure of my joints swelling in my spine but they don't know what exactly is causing the inflammation.

We know Ty causes inflammation... yet my infusion is friday, but this may very well be the thing that has set my thyroid off. This may also be the reason for the brittle bones. BUT, it's the only drug in the last two years that has done anything to slow the progression of MS.

My hip would be an easy fix with cortisone shots and PT, but I cannot have either of them. Again we go back to the Ty... no steroids allowed. And the broken bones in my back pretty much make physical therapy impossible.

I am at a crossroads and I am stuck. Do I stop the Ty and just let the MS take over and accept defeat or do I stay on the Ty and stave off the MS, and watch the rest of my body fail?

I know that with everything going on depression and anxiety are natural. I know that stress triggers manic episodes. But I also know that there is not a mood stabilizer on the market that is going to make this better, so I am not willing to start anymore meds. I will find ways to deal with the emotional side of things but it would be so much easier if I could see some kind of improvement in the physical side.

I just don't know. My doctors all seem to be idiots lately.
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Old 08-25-2010, 09:02 PM #3
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No words, just a big healing hug..
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Old 08-25-2010, 10:44 PM #4
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Leggs, I think you have to make up your own mind what YOU want to do? One of the choices may be the right door that you open. Think about it, write down, the pro and con's. Then open that door.

The Vertebroplasty procedure, is that bone fusion, or surgery for your neck, or is it radio frequency pulses?

Good luck making a decision, it's hard.
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Old 08-25-2010, 11:18 PM #5
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Its the one where they stick a big needle into the fractures and fill
the holes with cemented. Which should be a blast considering its my t8 t11 t12 l1 and ortho doesn't know i may have broken my coccyx yet because he's been on vacation
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Old 08-26-2010, 07:25 AM #6
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Quitting my DMD was one of the hardest decisions I had to make in a very long time. It wasnt life or death, but a question of quality of life. The interferons kept my liver/pancreas unhappy and my blood work set clinic records. The copaxone took a long time to take hold, but once it did, I started the mounting tally of side effects from it. As each week passed me by, I became overwhelmed with the increasing efforts to just try to find my balance in a new normal. I eventually reached a point where I said to myself that I would rather be dragging a leg, or yes, god forbid sit in a scooter and have my wits about me, my sense and sensibility about me than have that 30% chance of preventing the next relapse. it was a full year of research, debate, MD asking, relative/friend asking, and evaluating before I reached the point of ENOUGH!

I am NOT saying you should drop your DMD, but maybe you can take a look at all of the meds you are on, and get one of your more responsible MDs to help you get a better routine going, so that your bones, thyroid, and inflammation are not soaring. I cringe to say it, but can you add something to control the inflammation, say a zyflammed style product? or natural food that help with inflammation, like onions, and garlic and yogurts with active cultures, and remove things that add to the load like high fructose corn syrups, and sodium, and highly processed foods. I know you have a young family and a hugely busy schedule, so sometimes its so much easier to grab whats quick.

I want so badly to travel to where you are and just hug you! I can feel your exhaustion thru the screen.
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Old 08-26-2010, 07:29 PM #7
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Don't quit....Fire everybody instead..
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