Home Menu

Site Navigation



NeuroTalk Support Groups > > >

I Went Off Amprya again...

Reply
 
Thread Tools Display Modes
Old 09-19-2010, 11:32 AM #1
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
  
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default
I am considering calling his nurse tomorrow to address that and other things. When I see him I'll bring the insert.
Its kind of weird that he didn't know this, since he ran clinical trials on the drug...oh well.
Walking still hasn't improved since I started back on it but the tummy ache came right back. Grrr.
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (09-19-2010), SallyC (09-19-2010)
Old 09-19-2010, 12:40 PM #2
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default
Have you tried prilosec OTC? You have to take it first thing in the morning about an hour before you eat. I take nexium every morning which is a bit more effective than prilosec.
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (09-19-2010)
Old 09-20-2010, 02:48 PM #3
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
  
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default
Yes Barb, I've been taking it for a few years now. And my neuro said the same thing about Nexium, which is what I hope he'll prescribe for me.
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
Old 09-20-2010, 09:55 PM #4
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
  
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default
Neuro's nurse talked to him...I'm off of Ampyra for good. He feels it's not worth feeling that crummy. The nurse said they've been getting reports of different side effects from it. So I'm off...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (09-21-2010), Dejibo (09-21-2010)
Old 09-21-2010, 06:25 AM #5
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
  
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default
From what I have read of this medicine, its boosted walking speed is a temporary result and by the time a year passes, folks are back to baseline or slower. it simply isnt worth feeling miserable all day everyday for such a tiny increase in walking speed.

I hope you feel better.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (09-21-2010)
Old 09-21-2010, 09:40 AM #6
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
  
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default
Thanks, Dej. I'm going to work also on what I'm putting into my stomach...eat more natural foods. DH actually suggested going gluten free for a few weeks to see if that helps lower sxs/pain level. Ugh...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (09-21-2010)
Old 09-21-2010, 10:04 AM #7
barb02's Avatar
barb02 barb02 is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
Default
I thinking I am no longer going to push for a prescription -- even though I am still annoyed with my insurance company for denying me. Increasing my speed in a 25 foot time walk is not all that important to me. What I want is less spasticity so I can walk for more than five minutes without pain.
barb02 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (09-22-2010), hollym (09-21-2010)
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Amprya? John R Multiple Sclerosis 6 09-02-2010 02:33 PM


All times are GMT -5. The time now is 09:02 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home