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I Went Off Amprya again...

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Old 09-19-2010, 12:40 PM #1
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Have you tried prilosec OTC? You have to take it first thing in the morning about an hour before you eat. I take nexium every morning which is a bit more effective than prilosec.
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Old 09-20-2010, 02:48 PM #2
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Yes Barb, I've been taking it for a few years now. And my neuro said the same thing about Nexium, which is what I hope he'll prescribe for me.
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Old 09-20-2010, 09:55 PM #3
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Neuro's nurse talked to him...I'm off of Ampyra for good. He feels it's not worth feeling that crummy. The nurse said they've been getting reports of different side effects from it. So I'm off...
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Old 09-21-2010, 06:25 AM #4
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From what I have read of this medicine, its boosted walking speed is a temporary result and by the time a year passes, folks are back to baseline or slower. it simply isnt worth feeling miserable all day everyday for such a tiny increase in walking speed.

I hope you feel better.
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Old 09-21-2010, 09:40 AM #5
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Thanks, Dej. I'm going to work also on what I'm putting into my stomach...eat more natural foods. DH actually suggested going gluten free for a few weeks to see if that helps lower sxs/pain level. Ugh...
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Old 09-21-2010, 10:04 AM #6
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I thinking I am no longer going to push for a prescription -- even though I am still annoyed with my insurance company for denying me. Increasing my speed in a 25 foot time walk is not all that important to me. What I want is less spasticity so I can walk for more than five minutes without pain.
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Old 09-21-2010, 10:23 AM #7
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Quote:
Originally Posted by barb02 View Post
I thinking I am no longer going to push for a prescription -- even though I am still annoyed with my insurance company for denying me. Increasing my speed in a 25 foot time walk is not all that important to me. What I want is less spasticity so I can walk for more than five minutes without pain.
I didn't get a lot of results with walking better with less spasticity until I was over 60 mg of Baclofen per day. As long as I'm taking 60 - 80 mg and some Klonipin, my walking is better until I push too far.
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