Reply
 
Thread Tools Display Modes
Old 10-06-2010, 05:29 PM #1
nikki79 nikki79 is offline
Junior Member
 
Join Date: May 2010
Posts: 14
10 yr Member
nikki79 nikki79 is offline
Junior Member
 
Join Date: May 2010
Posts: 14
10 yr Member
Confused Can't sleep

I have been having very painful muscle cramps at night, usually in my left hand or left foot. It hurts so bad it wakes me from my sleep. I have a pretty high pain tolerance but this is hard to deal with. I take Baclofen 20 mg 3x a day and 4mg of Xanaflex at bed time. I have a little spasticity during the day, but at night it is 100x worse. My neuro says it is worse at night because our muscles are at rest. During the day we are constantly stretching them as we go about our every day routines.

Any suggestions???
nikki79 is offline   Reply With QuoteReply With Quote
Old 10-06-2010, 07:27 PM #2
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

Does your bed have a footboard?

I've had muscle spasms in my legs and feet since I was a little kid. (makes me wonder how long I've had the MS now)

What I used to do when I was younger and my childhood bed had a footboard was to put my foot on the footboard when the charley horse/spasm hit and press down on my toes and ball of my foot to make the spasm go away.

Now what I have to do, since my grown-up bed doesnt have a footboard is to get up immediately as soon as I feel a charley horse starting up. Then I have to either stand there precariously, depending on how far charley got, and then walk around. (and then pop a baclofen or two)

I think I need to go buy a bed that has a footboard...either that or sleep with my head at the foot of the bed and use the headboard as a footboard from now on.

I'm expecting to have a stampede of charley horses hit me tonight. I finally had the energy to get to the gym and ride the exercise bike today. (yay!) I just hope it's more a couple of slowly walking small shetland ponies instead of galloping clydesdales leading the stampede of charley horses.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
Old 10-06-2010, 09:12 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Your Neuro said it Nicci..stretching is the answer. I find that if I do some light stretching exercises before going to sleep, it helps a lot. If I'm really hurting, then I'll take a couple of Asprins, too.

I hope you sleep well tonight.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Old 10-07-2010, 08:57 AM #4
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

when I am crampy at night, I pop a couple of tums. the calcium in those pups really helps on crampy nights.

others use magnesium with good results.

Try some yoga or gentle stretches during the day to help keep your muscles tone.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
Old 10-07-2010, 06:02 PM #5
nikki79 nikki79 is offline
Junior Member
 
Join Date: May 2010
Posts: 14
10 yr Member
nikki79 nikki79 is offline
Junior Member
 
Join Date: May 2010
Posts: 14
10 yr Member
Default

I take calcium, magnesium, vitamin d and LDN. Nothing is really helping now. I guess it's just something else I have to learn to live with.
nikki79 is offline   Reply With QuoteReply With Quote
Old 10-07-2010, 06:37 PM #6
Blessings2You's Avatar
Blessings2You Blessings2You is offline
Elder
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Blessings2You Blessings2You is offline
Elder
Blessings2You's Avatar
 
Join Date: Jan 2008
Location: Vermont
Posts: 6,726
15 yr Member
Default

If I did cyber-hugs, I'd send you one.

I could deal with the cramps in my calves...slide out of bed and stretch them out.

I can't have the blankets tucked in, or my feet and ankles cramp. I didn't even know you could HAVE cramps in your ankles until MS.

Then I started having spasms in my thigh muscles, both the inner thigh and the front one right above the knee. That was pain that took my breath away and made me want to barf. Holy Cow.

I started taking a small dose of quinine sulfate back before the FDA yanked it because of certain risks. I get it in Canada now. Do I recommend doing that? Nope. There ARE risks, that's why it's not available here unless you have malaria.

I'm not much of a risk taker, but I was making myself sick just being afraid of one of those suckers hitting me during the night.

Other folks I know have had good results with other meds.
__________________
*
*
*

**My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26)
Blessings2You is offline   Reply With QuoteReply With Quote
Old 10-07-2010, 10:31 PM #7
jackD's Avatar
jackD jackD is offline
Member
 
Join Date: Jan 2008
Location: Maryland outside WASH DC
Posts: 258
15 yr Member
jackD jackD is offline
Member
jackD's Avatar
 
Join Date: Jan 2008
Location: Maryland outside WASH DC
Posts: 258
15 yr Member
Default

Quote:
Originally Posted by nikki79 View Post
I take calcium, magnesium, vitamin d and LDN. Nothing is really helping now. I guess it's just something else I have to learn to live with.
LDN can cause some severe sleep problems.

jackD
__________________
As God is my witness, I really thought turkeys could fly!
(WKRP in Cincinnati)
jackD is offline   Reply With QuoteReply With Quote
Old 10-07-2010, 11:35 PM #8
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Quote:
Originally Posted by jackD View Post
LDN can cause some severe sleep problems.

jackD
At first but I'm on LDN 7+ years now and no problems at all with falling asleep, now. Different strokes for different folks though.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
hEALING THE BRAIN IN REM SLEEP & DELTA SLEEP lou_lou Parkinson's Disease 0 03-08-2009 05:58 AM
pdoc wants me to see a sleep specialist about possible sleep apnea Mari Bipolar Disorder 19 09-30-2008 10:42 PM
UARS/Upper Airway Resistance Syndrome, type of sleep disorder, is not sleep apnea: concerned lady Sleep Apnea & Sleep Disorders 5 11-25-2007 03:08 AM


All times are GMT -5. The time now is 04:45 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.