Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Venous Insufficiency and Multiple Sclerosis:Too Soon to Tell

Reply
Page 3 of 5 12 3 45
 
Thread Tools Display Modes
Old 09-25-2010, 02:56 PM #21
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
  
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default
according to that link most folks take 2 to 3 months to BEGIN to see improvements. This flys in the face of those posting immediate post operative videos showing them walking out of the hospital. Some are reporting feeling worse after the proceedure.

there is so much conflicting information. it just scares me.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
Old 09-25-2010, 02:59 PM #22
kicker's Avatar
kicker kicker is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default
Yes. I'm left confused.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Old 09-25-2010, 03:07 PM #23
EddieF's Avatar
EddieF EddieF is offline
Member
  
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
Default
Lady - you're getting it done? If so YOU'RE LUCKY!! God I wish "I" could tomorrow make that yesterday!
EddieF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (09-26-2010), Lady (09-25-2010)
Old 09-25-2010, 03:18 PM #24
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
I guess like everything with MS it's an individual thing. We all have different sx.......we'll all have different types of "success" with this procedure. I would think alot depends on the severity of your MS when you have CCSVI performed. The worse you are the less pronounced your improvement would be. I'm just guessin'.......
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-12-2010)
Old 09-25-2010, 04:23 PM #25
EddieF's Avatar
EddieF EddieF is offline
Member
  
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
Default
EXACTLY - DRUGS WORK FOR SOME BUT NOT ALL!

I'm going downhill in a HURRY on Tysabri, Rebif did nothing, Copaxone was amazing 3yrs then down I went! Maybe it's because the majority are women and more likely to not have the b---'s guys do literally but for me, a paraplegic LOSING his hands, come on!

The bunch of you that are stable and happy the way you are that's terrific!
But the bunch of us that are seeing our death bed approach no matter how hard we exercise, ANY possibility's a BEAUTIFUL THING!
Can I get a AMEN?
EddieF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (09-25-2010), jeep4wd (09-25-2010), Kitty (09-25-2010), Lady (09-25-2010)
Old 09-25-2010, 04:29 PM #26
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
Amen, Eddie. I totally understand and I pray that this is the right procedure for you.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (09-25-2010), EddieF (09-25-2010), Lady (09-25-2010)
Old 09-25-2010, 05:17 PM #27
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
  
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default
@ Lady. Are you paying for the MRV out of your own pocket?

And the going rate I have seen is $2400 for the MRV.
Aarcyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (09-26-2010), Lady (09-26-2010), SallyC (09-25-2010)
Old 09-25-2010, 11:03 PM #28
Lady's Avatar
Lady Lady is offline
Senior Member
  
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default
Quote:
Originally Posted by Aarcyn View Post
@ Lady. Are you paying for the MRV out of your own pocket?

And the going rate I have seen is $2400 for the MRV.

It depends where you have it done and what type of ins you have. MS is not mentioned, ever. It is Venous Disease for ins, which it is. Medicare or Medicaid pay for most of it. Not for travel expenses, hotel over one night, or meals.

Many private ins companies pay for venous disease procedures all the time. We should not have kinks or blockages in our veins, it's not normal. If it were in our legs they would fix it, right?

Once the veins are fixed (congenital defect, or bone growth or pressure on veins) MS symptoms disappearing are the bonus we get.

Chicken or the egg theory. I will still stay on LDN, others stay on whatever they think is helping them too. Or they may toss their meds. out the window. JMO
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
Old 09-26-2010, 02:25 AM #29
sw8689 sw8689 is offline
Junior Member
  
Join Date: May 2008
Posts: 43
15 yr Member
sw8689 sw8689 is offline
Junior Member
 
Join Date: May 2008
Posts: 43
15 yr Member
Default
Quote:
Originally Posted by EddieF View Post
EXACTLY - DRUGS WORK FOR SOME BUT NOT ALL!

I'm going downhill in a HURRY on Tysabri, Rebif did nothing, Copaxone was amazing 3yrs then down I went! Maybe it's because the majority are women and more likely to not have the b---'s guys do literally but for me, a paraplegic LOSING his hands, come on!

The bunch of you that are stable and happy the way you are that's terrific!
But the bunch of us that are seeing our death bed approach no matter how hard we exercise, ANY possibility's a BEAUTIFUL THING!
Can I get a AMEN?
Amen Eddie!
sw8689 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (09-26-2010), Lady (09-26-2010)
Old 09-26-2010, 11:37 AM #30
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
  
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default
@sw8689 didn't your brother have a procedure in AZ a few month's ago?
Aarcyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (09-26-2010)
Reply
Page 3 of 5 12 3 45

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
PP multiple sclerosis kicker Multiple Sclerosis 10 12-02-2009 12:13 PM
multiple sclerosis? ConnieS Myasthenia Gravis 15 09-13-2009 02:07 AM
Chronic Cerebro Spinal Venous Insufficiency zapalicious Multiple Sclerosis 11 06-26-2009 02:40 AM
L3 Fracture & Multiple Sclerosis possma Spinal Disorders & Back Pain 0 05-08-2009 04:37 AM
Vitamins and multiple sclerosis Tree55 Vitamins, Nutrients, Herbs and Supplements 2 09-10-2008 06:25 PM


All times are GMT -5. The time now is 02:24 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home